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Does Russell Silver Syndrome have a cure?

Here you can see if Russell Silver Syndrome has a cure or not yet. If there is no cure yet, is Russell Silver Syndrome chronic? Will a cure soon be discovered?

Russell Silver Syndrome cure

Russell Silver Syndrome does not have a specific cure. However, treatment focuses on managing the symptoms and improving the individual's quality of life. This may involve a multidisciplinary approach, including growth hormone therapy, nutritional support, speech therapy, and educational interventions. Early intervention and ongoing medical care can help individuals with Russell Silver Syndrome lead fulfilling lives.



Russell Silver Syndrome (RSS) is a rare genetic disorder characterized by growth retardation and various physical abnormalities. It is caused by genetic changes or mutations that affect the regulation of growth and development.



Currently, there is no known cure for Russell Silver Syndrome. However, treatment options are available to manage the symptoms and improve the quality of life for individuals with RSS.



Management of RSS typically involves a multidisciplinary approach, including regular monitoring of growth and development, nutritional support, and addressing any associated medical issues. Growth hormone therapy may be recommended to stimulate growth in some cases.



Early intervention is crucial in managing RSS. Children with RSS may benefit from early childhood intervention programs, which can provide specialized support and therapies to address developmental delays and promote optimal growth.



It is important for individuals with RSS to receive ongoing medical care and regular follow-ups with a healthcare team experienced in managing the condition. This helps to monitor growth, address any emerging issues, and provide appropriate support and interventions as needed.



While there is no cure for Russell Silver Syndrome, with proper management and support, individuals with RSS can lead fulfilling lives and achieve their full potential.


Diseasemaps
3 answers
Theres no direct cure, unless scientists wish to modify our genetic nature.

Posted Aug 21, 2017 by Scarlett 2100
I find this question difficult to answe because, I've dated other little people who don't have this particular dwarfism. I've never known anyone in the community of LPA to ever seek a cure for their dwarfism.

However, I've heard growth hormone as a child is a wonderful "cure".

Posted Aug 21, 2017 by Clare 900

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World map of Russell Silver Syndrome

Find people with Russell Silver Syndrome through the map. Connect with them and share experiences. Join the Russell Silver Syndrome community.

Stories of Russell Silver Syndrome

RUSSELL SILVER SYNDROME STORIES
Russell Silver Syndrome stories
My son was born in 2010. He was failing to thrive no matter how much i fed him. When he was 3 we finally had genetic testing done our doctor was actually looking for something else when they discovered mupd7.  Hes now 6 years old and is also auti...
Russell Silver Syndrome stories
Our daughter Nancy Beatrice Nolan joined the world 3 weeks early on 19th August 2014, weighing in at 5lb 4.5oz.  In the weeks and months that followed Nancy failed to grow or gain weight as you would expect a baby would . She wasn’t taking much m...
Russell Silver Syndrome stories
my son harry is 4. He was diagnosed with RSS this year matUPD7. 
Russell Silver Syndrome stories
Jordan is 13 now, he was diagnosed at 3 by a geneticist at Yale. He's been on growth hormone for years. 
Russell Silver Syndrome stories
IZAIAH  MY SON IZAIAH WAS BORN IN DECEMBER 2013 HE WAS BORN WITH HLHS AND SHONES SYNDROME BUT HES HAD LOTS OF HEART SURGERY AND HASN'T BEEN TO WELL SO WE PUT HIM NOT GROWING DOWN TO THAT BUT THIS YEAR I ASKED ABOUT DWARFISM AND WE WENT TO SEE AN EN...

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Russell Silver Syndrome forum

RUSSELL SILVER SYNDROME FORUM
Russell Silver Syndrome forum
Hello I'm new here and have been searching for support with RSS I have never met anyone that has it and I've been very alone with this all my life 

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