Stories of Saethre-Chotzen syndrome

Saethre-Chotzen syndrome stories
 Dominic was born in May 2014, via cesarean. From day one he had some face asymmetry. His forehead on the left protruded out, his eye slanted down, and his nose was crooked (leaned to the left). Doctors said he was just smushed and would return ...
Saethre-Chotzen syndrome stories
I am currently working as a Craniofacial Awareness Advocate.   As a high-school and college dropout, I earned college degrees after returning to school - studying Criminal Justice with a minor in Psychology. I hope to continue on a path of stu...
Saethre-Chotzen syndrome stories
I have two boys with saethre-chotzen syndrome

Tell your story and help others

Tell my story

View more

Saethre-Chotzen syndrome forum


Ask a question and get answers from other users.

Ask a question

View more

Statistics of Saethre-Chotzen syndrome

1 people with Saethre-Chotzen syndrome have taken the SF36 survey. Mean of Saethre-Chotzen syndrome is 3380 points (94 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

View more

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map

Saethre-Chotzen syndrome

Join the map