- Sarcoidosis
- Interviews
Stacky's interview
How did all start?
2012
Do you already have a diagnosis? How long did it take you to get it?
yes
For what medical specialties have you been treated? What has been the most useful specialty for your?
prednisolone , needed it but side effects were awful
What has been the most useful thing for you so far?
my family support
What have been your biggest difficulties?
exteme fatigue
How has your social and family environment reacted? Have your social or family relationships changed?
family support has been great , but trying to explain to other people that you don't want or can't take part in social activities is very hard as someone who was always the first to party
What things have you stopped doing?
going out , driving anywhere I don't know
What do you think about the future?
only can think it will get worse
So far, which years have been the best years in your life? What have you done during them?
always enjoyed myself up until this thing took my breath away , and now they say I have liver disease
What would you like to do if you didn’t have your condition?
enjoy life more
If you had to describe your life in a sentence, what would it be?
worrying
Finally, what advice would you give to a person in a similar situation?
just as I do ....you just have to get on with it !