I'm so sorry to hear this. I also have it in my lungs and Neuro sarcoidosis. I just lost the hearing in my left ear. Remicade worked great for the lungs for me. It doesn't work for the brain or nervous system. I'm also on steroids now.
Itâs been a while since you posted your story. I hope things are getting better for you!
My chronic pain continues daily my pain in my nerves and bones is the worst. My heart breaks for anyone suffering from this disease