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Is it easy to find a partner and/or maintain relationship when you have Sarcoidosis?

People with experience in Sarcoidosis give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Sarcoidosis. What are the possible difficulties in having a relationship?

Couple and Sarcoidosis

Is it easy to find a partner and/or maintain a relationship when you have Sarcoidosis?


When it comes to finding a partner and maintaining a relationship, having Sarcoidosis can present unique challenges. Sarcoidosis is a chronic inflammatory disease that can affect multiple organs in the body, most commonly the lungs and lymph nodes. While it is a physical condition, it can also have emotional and psychological impacts on individuals living with it.


Challenges in finding a partner:


One of the challenges individuals with Sarcoidosis may face is the fear of rejection or judgment from potential partners. Sarcoidosis can cause visible symptoms such as skin rashes, swollen lymph nodes, or even facial paralysis in some cases. These physical manifestations can make individuals self-conscious and worried about how they will be perceived by others.


Additionally, Sarcoidosis is a chronic condition that requires ongoing medical care and management. This can mean frequent doctor visits, medication regimens, and potential limitations on physical activities. These factors can make individuals hesitant to enter into new relationships, fearing that their potential partner may not understand or be willing to accommodate their needs.


Maintaining a relationship:


Once in a relationship, individuals with Sarcoidosis may face additional challenges in maintaining it. Sarcoidosis can cause fatigue, pain, and other symptoms that can impact daily life and activities. This can lead to limitations in participating in social events, physical intimacy, or even simple day-to-day tasks.


Communication becomes crucial in maintaining a healthy relationship. It is important for individuals with Sarcoidosis to openly discuss their condition, its impact on their lives, and any specific needs or accommodations they may require. This can help their partner better understand and empathize with their situation, fostering a supportive and understanding environment.


Support and understanding:


Having a partner who is supportive and understanding is essential for individuals with Sarcoidosis. It is important to find someone who is willing to educate themselves about the condition, its symptoms, and its impact on daily life. This can help alleviate any misconceptions or fears they may have and foster a more empathetic and supportive relationship.


Support groups and online communities can also be valuable resources for individuals with Sarcoidosis and their partners. Connecting with others who are going through similar experiences can provide a sense of belonging, understanding, and shared knowledge. It can also offer an opportunity to learn from others' experiences and gain insights into how they navigate relationships while living with Sarcoidosis.


Self-care and self-acceptance:


Lastly, it is important for individuals with Sarcoidosis to prioritize self-care and self-acceptance. Building a strong sense of self-worth and self-confidence can help navigate the challenges that come with the condition. It is crucial to remember that Sarcoidosis does not define a person's worth or their ability to have a fulfilling relationship.


While finding a partner and maintaining a relationship may have its challenges when living with Sarcoidosis, it is important to remember that love, understanding, and support can transcend any physical condition. With open communication, empathy, and a supportive partner, individuals with Sarcoidosis can build and maintain meaningful relationships.


Diseasemaps
12 answers
Absolutely. However it can be very physically and emotionally draining for everyone involved. Being a caregiver can be very difficult to watch your loved one endure the affects of this disease.

Posted Sep 7, 2017 by Kristie 2000
Keeping a relationship can be stressful on people once someone has become sick or sarcoidosis because some people have high maintenance of Health level and the partner cannot handle it. Some people stick around and stay it out it just depends on the person.

Posted Sep 11, 2017 by XTIENNA 2000
In all relationships there are times when one person may become ill, but living with someone who has sarcoidosis is challenging. It is dependent on the individual circumstances of both people as to whether any relationship works and is sustained over a lifetime. You are no different to anyone else with an illness and the disease does not define who you are or what choices you make in life although it may limit them.

Posted Oct 26, 2017 by Diane 2735
It can be difficult but I have a very loving and caring wife. Yes having Sarcoidosis is life changing but so is having children! It all depends on your attitude, if you make your illness, the main thing in your life instead of your partner then a relationship will falter.

Posted Oct 27, 2017 by KindredSpirit 2050
Yes you can live a normal life as far as relationships are concerned

Posted Oct 27, 2017 by Wendy 2000
Some people who have sarcoid their lives change so much their respective partners lives also change
Many adapt and continue to have a loving relationship
Just remember your body has changed you will have to adapt to your condition so will your partner
In some cases the healthy partner can no longer cope with the life change and can break up with their partner who has gone through a massive life change

Posted Oct 27, 2017 by Stewart 2000
I think as with any relationship the most important thing is communication. Be upfront and honest and don't try to hide anything. But also do not be overdramatic about your condition either. Sarcoid does not have to Define your life.

Posted Jul 4, 2018 by msinky 2550
I dont think its hard to find or maintain a good healthy relationship

Posted Oct 8, 2019 by Lashawn 2500
You are still a human being And you need to be loved just like everyone else. If you find the person who will stand by your side through all of your doctor's appointments there a keeper. Sad part of this illness is in Some cases if their relationship is not strong and they're not the right Person for you they don't stick

Posted Mar 8, 2020 by Elizabeth 4800
My illness was an ongoing issue for my husband until I finally got a diagnosis and started taking him to my doctor appointments. I think it is hard for our loved ones to see us in pain, go to the doctor, and the doctors say they can't figure it out. This happens, sometimes, for years for people living with Sarcoidosis as it's a difficult disease to detect. It's hard for us to hear this, and harder for our loved ones to understand that we are suffering without a direct reason or treatment.

Posted Jan 18, 2021 by Althea 4550
My first advice to you who are looking for a partner is "honesty". My husband and I asked the important questions, i.e. "do you see yourself sitting on the front with me just talking when we are older". Then, 10 years into our marriage I was diagnosed with Sarcoidosis. I asked him, "are you in it to the end?" "If not it's your time to run and go." That was 22 years ago and we're happier than ever.

Posted Sep 14, 2023 by Emma Johnson 2500

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