Living with Sarcoidosis. How to live with Sarcoidosis?

Can you be happy living with Sarcoidosis? What do you have to do to be happy with Sarcoidosis? Living with Sarcoidosis can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Sarcoidosis

Living with Sarcoidosis

Sarcoidosis is a chronic inflammatory disease that can affect various organs in the body, most commonly the lungs, lymph nodes, skin, and eyes. While there is no cure for sarcoidosis, there are ways to manage the symptoms and improve your quality of life. Here are some tips on how to live with sarcoidosis:

1. Educate Yourself

It is important to understand the nature of sarcoidosis and how it affects your body. Educate yourself about the disease, its symptoms, and potential complications. This knowledge will empower you to make informed decisions about your treatment and lifestyle choices.

2. Build a Support Network

Living with sarcoidosis can be challenging, both physically and emotionally. Surround yourself with a supportive network of family, friends, and healthcare professionals who understand your condition. They can provide encouragement, help you cope with the ups and downs, and offer assistance when needed.

3. Follow Your Treatment Plan

Work closely with your healthcare team to develop a personalized treatment plan. This may involve medications to reduce inflammation, manage symptoms, and prevent complications. It is crucial to take your medications as prescribed and attend regular check-ups to monitor your condition.

4. Maintain a Healthy Lifestyle

Adopting a healthy lifestyle can have a positive impact on your overall well-being. Eat a balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Regular exercise, as recommended by your healthcare provider, can help improve lung function, reduce fatigue, and boost your mood. Avoid smoking and limit alcohol consumption, as they can worsen symptoms and interfere with medications.

5. Manage Stress

Stress can exacerbate sarcoidosis symptoms. Find healthy ways to manage stress, such as practicing relaxation techniques (deep breathing, meditation, yoga), engaging in hobbies, spending time with loved ones, or seeking professional counseling if needed. Prioritize self-care and make time for activities that bring you joy and relaxation.

6. Protect Your Lungs

Since sarcoidosis often affects the lungs, it is essential to take steps to protect them. Avoid exposure to environmental irritants, such as dust, chemicals, and pollutants. If necessary, wear a mask or respirator when in dusty or polluted environments. It is also advisable to get vaccinated against respiratory infections, such as flu and pneumonia, as these can worsen sarcoidosis symptoms.

7. Monitor Your Symptoms

Keep track of your symptoms and any changes in your condition. Note down any new or worsening symptoms, as well as triggers that may exacerbate them. This information will be valuable during your doctor's visits and can help guide your treatment plan.

8. Stay Positive

Living with a chronic illness like sarcoidosis can be challenging, but maintaining a positive outlook can make a significant difference. Surround yourself with positivity, engage in activities that bring you joy, and celebrate small victories along the way. Remember that you are not alone, and there is support available to help you navigate this journey.

Remember, always consult with your healthcare provider for personalized advice and guidance on managing your sarcoidosis.

Diseasemaps

Posted Apr 18, 2017 by Curt Hodapp 1150

It is a coping mechanism. Sarcoidosis can affect differed propping different ways.

Posted Apr 19, 2017 by Terika 1000

Living with sarcoidosis is a very difficult disease and in order to be happy you need to have a positive attitude. Each person is different by how debilitating their soccer doses is and by living life with a positive attitude that you can beat the disease and by having loved ones in your life that support you is a big factor in being happy

Posted Apr 19, 2017 by Poliseno 1000

yes but it is hard. you just have to look at what you are able to do and what you have and not focus on what you can do

Posted May 9, 2017 by Michael 1150

You need a fair amount of rest, exercise and support. Medication must be taken as prescribed...see a psychologist if need be causecxotisones can MESS with your mind....live a less stressed life

Posted May 31, 2017 by Salosh 3601

You have to try and keep a positive and uplifting attitude. Its ok to be on antidepressants to help. Being sick sucks.. absolutely. But being negative, depressed and giving up is not an option. You can live a long happy life with sarcoid. But thats up to you and your specialist to make positive strides.

Posted Sep 7, 2017 by Kristie 2000

You must learn how to not stress over this disease because stress is sarcoids worst enemy. Sarcoidosis feeds on the purple monster called sarcoidosis. Purple being the color of sarcoidosis disease like pink is for cancer. Learn to meditate and relax. Avoid stressful life situations.

Posted Sep 11, 2017 by XTIENNA 2000

Your life does change when you are diagnosed with Sarcoidosis however you can find new things to do to replace the things you did previously which are now impossible in some cases. Joining chat forums and support groups helps to understand this disease and to find out that you are not alone in this strange journey. Being Happy is a choice we make when we make the best of things and try to be the best we can be. Pace yourself and plan life activities to look forward to but try to make them as flexible as possible to that if you have a bad day/week or time the activity can be moved to another time.

Posted Oct 26, 2017 by Diane 2735

Once you accept that you are ill and that perhaps cannot do what you once could do, things can get better. It is trying to fight that wears you out. You can be happy but others may find it hard to understand your symptoms and the affect they have on your life.

Posted Oct 27, 2017 by KindredSpirit 2050

Living with sarcoid is never easy
But what does help is a good team to turn to when things get on top of a patient
Keeping a positve mental attitude will help the person sinking into deep depression
Music and light exercise to help some one improve their mental health will work

Posted Oct 27, 2017 by Stewart 2000

Living with Sarcoidosis can be a challenge
Different people will have different limitations.
For fatigue it is important to understand how much you can do before exhausting yourself.
Sadly this will be a lot less than before you became effected by the illness.
The most important thing is understanding your personal journey.

Posted Oct 27, 2017 by Wendy 2000

Yes of course you can live happily with sarcoidosis but many people are severely affected by it making life very hard.

Posted Oct 27, 2017 by Sandra 1200

Accept your limitations and to be blunt sometimes anti depressants as autoimmune diseases often linked to depression

Posted Oct 28, 2017 by Penny 1200

It rots!!
Still live everyday
Help others

Posted Jan 11, 2018 by Cathleen 1900

Learn as much as you can about the disease. Make notes of how it affects you! And treat yourself the way you would treat a good friend, give yourself good advice on rest treating yourself well and taking good care of yourself.

Posted Jul 4, 2018 by msinky 2550

Have a primary care doctor, get regular checkups..Have a Opthamologist check your eyes every 12 months, Have a CT SCAN every 12 months and do the best you can to stay healthy and above all else listen to your body and seek help when you need it...

Posted Nov 13, 2018 by Wen 2100

Take one day at a time. Do only what your body will allow

Posted Oct 8, 2019 by Lashawn 2500

Live to your best of the Your ability. Try not to lay around too much. When I catch some Sun it helps me feel better.

Posted Mar 8, 2020 by Elizabeth 4800

It can be simple or very complex depending on your severity. For me, I have a team of Doctors. I live in daily pain with fatigue and some days are worse than others. On good days do what you can and on bad days rest. I always keep a good attitude with humor. I don't dwell on the pain/ negative/ difficult life I have been given.

Posted Jan 18, 2021 by Althea 4550

Just live! You have a sarcoidosis. You are not a sarcoidosis. It’s not « your » but « a » sarcoidosis! Keep living your life, do mindfullness, yoga, enjoy thé little things, be What You wannabe and dont let obstacle and Health issues control your mind! Keep going

Posted Feb 13, 2021 by Hélène 1100

I started on COPD Herbal treatment from Ultimate Health Home, the treatment worked incredibly for my lungs condition. I used the herbal treatment for almost 4 months, it reversed my COPD. My severe shortness of breath, dry cough, chest tightness gradually disappeared. Reach Ultimate Health Home via their email at [email protected] . I can breath much better and It feels comfortable!

Posted Apr 5, 2021 by Robert 9039

To live with Sarcoidosis is to know your limitations. Some days are better than others. Know when to rest. Take your meds. Have someone to talk to is also key.

Posted Sep 14, 2023 by Emma Johnson 2500

Translated from french Improve translation

You can live happy with the Sarcoidose if we stick to the treatment and the diet, and of course he doesn't need to be isolated and to do a little bit of physical activity.

Posted Sep 8, 2017 by Ramzi 1000