Which advice would you give to someone who has just been diagnosed with Scheuermanns disease?
See some advice from people with experience in Scheuermanns disease to people who have just been diagnosed with Scheuermanns disease
Scheuermann's Disease: Advice for Newly Diagnosed Individuals
Receiving a diagnosis of Scheuermann's disease can be overwhelming and raise numerous questions about your future health and well-being. It's important to remember that you are not alone in this journey. With the right knowledge, support, and proactive measures, you can effectively manage the condition and lead a fulfilling life. Here are some essential pieces of advice to consider:
1. Educate Yourself
Take the time to understand Scheuermann's disease and its implications. Research reputable sources, consult medical professionals, and join support groups to gain insights from others who have experienced similar challenges. Knowledge empowers you to make informed decisions about your treatment options and lifestyle adjustments.
2. Build a Support Network
Surround yourself with a supportive network of family, friends, and healthcare professionals who can provide emotional support, guidance, and encouragement throughout your journey. Sharing your experiences and concerns with others who understand can be immensely beneficial.
3. Consult with Specialists
Seek out medical professionals who specialize in treating Scheuermann's disease, such as orthopedic surgeons, physical therapists, and pain management specialists. They can offer expert advice tailored to your specific condition and help develop a comprehensive treatment plan.
4. Follow Your Treatment Plan
Adhere to the treatment plan recommended by your healthcare team. This may include a combination of physical therapy, pain management techniques, bracing, and, in rare cases, surgery. Consistency and commitment to your treatment plan are crucial for managing symptoms and preventing further complications.
5. Engage in Regular Exercise
Physical activity plays a vital role in managing Scheuermann's disease. Engage in exercises that strengthen your core muscles, improve posture, and increase flexibility. Low-impact activities like swimming, cycling, and yoga can be particularly beneficial. However, always consult your healthcare provider before starting any exercise regimen.
6. Practice Good Posture
Developing and maintaining good posture is essential for managing Scheuermann's disease. Be mindful of your posture throughout the day, whether sitting, standing, or walking. Use ergonomic chairs and supportive cushions when necessary, and avoid prolonged periods of sitting or standing in one position.
7. Manage Pain Effectively
If you experience pain or discomfort, discuss pain management strategies with your healthcare team. They may recommend over-the-counter pain relievers, physical therapy techniques, or other interventions to alleviate symptoms. It's important to address pain promptly to maintain your quality of life.
8. Prioritize Self-Care
Living with Scheuermann's disease can be physically and emotionally challenging. Make self-care a priority by engaging in activities that promote relaxation, stress reduction, and overall well-being. This may include hobbies, meditation, deep breathing exercises, or seeking professional counseling if needed.
9. Stay Positive and Seek Support
While Scheuermann's disease may present challenges, maintaining a positive mindset can greatly impact your overall well-being. Surround yourself with positive influences, seek support from loved ones, and celebrate small victories along your journey. Remember, you are more than your diagnosis.
10. Stay Informed about Research and Treatment Advances
Medical advancements are continually being made in the field of Scheuermann's disease. Stay informed about the latest research, treatment options, and emerging therapies. Discuss these developments with your healthcare team to explore any potential benefits they may offer.
Remember, this advice is not a substitute for professional medical guidance. Always consult with your healthcare provider for personalized advice based on your specific condition and needs.
Posted Feb 28, 2017 by Mikeloveskorn 1720
My son was diagnosed with Scheuermanns almost 2 yrs ago at 14. I noticed what I thought was "poor posture" than saw him bend down one day and knew something was wrong. I got him right in for an xray and at that point he had a 77% curve and we experiencing some pain. His diagnosis was Scheuermann's and not one I knew had every heard of this. I started researching and calling orthopedists, surgeons anything I could do to find out about his disease. In the 18 mos to follow we saw three doctors, one which I was told was the leading ortho surgeon at Children's Hospital in Washington, DC. All of these doctors told me that they did not feel surgery was the best option and that they would not put their own child thru it. My son, who is now 16, disliked the way he looked, it effected his self esteem and eventually the pain increased. I continued to research and try to find a doctor who had a more positive outlook on the surgery. To make a very long story short last Nov I was put in touch with Dr. Paul Sponseller from John Hopkins in Baltimore, MD. He was very familiar with SD, the surgery and was very confident that he could help. He felt he could correct the curve and get it back to 30-40 degrees and that he was confident in the recovery.
My son had the surgery 3 weeks ago. What I found out while spending the week at Hopkins with my son is that people fly in from all over to have Dr. Sponseller operate on them or their kids who have SD. I highly recommend him and as of today my son is doing terrific. He has two titanium rods and about 21 screw in his back. He he stands 3 1/2 inches taller and is broader. My son's smile says it all. If you find the right doctor and your curve is causing you pain I would recommend having the surgery.
Posted Jul 30, 2017 by Gayle 100
