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What is the prevalence of Setleis Syndrome?

How many people does Setleis Syndrome affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Setleis Syndrome

Setleis Syndrome is an extremely rare genetic disorder characterized by distinctive facial features, skin abnormalities, and developmental delays. Due to its rarity, the prevalence of Setleis Syndrome is not well-established. Limited case reports suggest that it may affect only a handful of individuals worldwide. The exact number of affected individuals is difficult to determine, making it an exceptionally uncommon condition.



Setleis Syndrome is an extremely rare genetic disorder characterized by distinctive facial features and skin abnormalities. Due to its rarity, the prevalence of Setleis Syndrome is not well-documented in medical literature. The condition is estimated to affect a very small number of individuals worldwide, making it difficult to determine an exact prevalence rate.


Individuals with Setleis Syndrome typically exhibit unique facial characteristics such as a mask-like appearance, narrow eye openings, a small mouth, and a thin upper lip. Additionally, they may have skin abnormalities including scar-like lesions, tightness, or thinness of the skin.


Due to the limited number of reported cases, it is challenging to gather comprehensive data on the prevalence and incidence of Setleis Syndrome. However, medical professionals and researchers continue to study and learn more about this rare condition to provide better understanding and support for affected individuals and their families.


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Prevalence of Setleis Syndrome

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World map of Setleis Syndrome

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Stories of Setleis Syndrome

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Setleis Syndrome forum

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