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Living with Short Bowel Syndrome. How to live with Short Bowel Syndrome?

Can you be happy living with Short Bowel Syndrome? What do you have to do to be happy with Short Bowel Syndrome? Living with Short Bowel Syndrome can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Short Bowel Syndrome

Living with Short Bowel Syndrome

Living with Short Bowel Syndrome


Short Bowel Syndrome (SBS) is a condition that occurs when a significant portion of the small intestine is surgically removed or is not functioning properly. This can lead to various challenges in digestion, absorption of nutrients, and overall quality of life. However, with proper management and lifestyle adjustments, individuals with SBS can lead fulfilling lives.



1. Nutritional Management


One of the key aspects of living with SBS is ensuring adequate nutrition. Consult with a registered dietitian who specializes in gastrointestinal disorders to develop a personalized meal plan. This plan may include:



  • Frequent small meals: Consuming smaller, more frequent meals throughout the day can help optimize nutrient absorption.

  • High-calorie, high-protein foods: Including foods rich in calories and protein can help meet nutritional needs. This may involve incorporating lean meats, dairy products, eggs, legumes, and nuts into your diet.

  • Supplements: Your healthcare provider may recommend specific supplements such as vitamins, minerals, or specialized formulas to ensure you receive adequate nutrients.



2. Hydration


Proper hydration is crucial for individuals with SBS. Since the small intestine plays a role in fluid absorption, it is important to drink enough fluids throughout the day. Water, herbal teas, and clear broths can help maintain hydration levels. Avoid excessive consumption of caffeinated or alcoholic beverages as they can contribute to dehydration.



3. Medication and Treatment


Your healthcare provider may prescribe medications to manage symptoms and improve digestion. These may include:



  • Antidiarrheal medications: These can help control diarrhea, a common symptom of SBS.

  • Acid-suppressing medications: If you experience excessive stomach acid production, these medications can help reduce discomfort.

  • Probiotics: These supplements contain beneficial bacteria that can support gut health and improve digestion.


In some cases, additional treatments such as parenteral nutrition (intravenous feeding) or intestinal transplantation may be necessary. Discuss these options with your healthcare team if needed.



4. Emotional Support


Living with SBS can be emotionally challenging. It is important to seek emotional support from friends, family, or support groups. Connecting with others who have similar experiences can provide valuable insights, coping strategies, and a sense of belonging.



5. Regular Follow-ups


Regular follow-up appointments with your healthcare provider are essential to monitor your condition, adjust treatment plans, and address any concerns. Be proactive in discussing any changes in symptoms or overall well-being.



Living with Short Bowel Syndrome requires a multidisciplinary approach involving healthcare professionals, dietitians, and emotional support. By following a personalized nutrition plan, staying hydrated, adhering to prescribed medications, seeking emotional support, and maintaining regular follow-ups, individuals with SBS can effectively manage their condition and lead fulfilling lives.


Diseasemaps
5 answers
*it's quite a challenge
*nothing can be planned ahead
* depends on your body
*good days put on your smile and reddest lipstick on your off days - stay in your save place. Home, bed, where ever you can be as calm & relaxed as be
*your hubby/partner & family must be involved for support and understanding

Posted Feb 28, 2017 by Riana Rautenbach 1500
Be focus and don’t loose hope, keep moving and consult experiance medical team who has knowledge with SBS.

Keep in mind that each person may have his/her own difficulties even if they share the same case.

Posted Nov 6, 2018 by ZF 4600
I can live normally. At night I have TPN (total parenteral nutrition), but I can eat like normal people. At day I am TPN free and I can do all I want. It's not ok to go to public pool because of all bacteria that can cause sepsis, but sea is ok. You are not so different from everyone else, so you just live normally. If something don't work for you, don't do it :)

Posted Jan 28, 2019 by Tina 100
Translated from spanish Improve translation
Accept it, continue the medical care, follow the diet defined. Enjoy every moment of life, enjoy every food is tolerated and which nourishes the body. Surround yourself with a loving family, and that is solidarity through the diet

Posted Nov 8, 2017 by Liz 2000

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