Stories of Sjogren

STORY
Sjogren stories
My story is so long I wong bore anyone with it, but here is the list of my diagnoisis. First dx with photosensitivity The hypothyroidism then lupus for which was changed to scleroderma then was changed to UCTD Then Raynauds microscopic colitis ...
Sjogren stories
My name is Barbara Weber and I suffer from this disease called Sarcoidosis. It affects your body’s organs for example skin, heart, kidneys, but mainly the lungs. In people who have Sarcoidosis, the inflammation doesn't go away. Instead, some of...
Sjogren stories
Born in Melbourne in the early 60s to Italian parents, I remember at the age of 6 screaming to my parents, as yet again I had a pasta dish for dinner, “I don’t like pasta! I love rice. Why can’t I just have rice”.  I neve...
Sjogren stories
It all started in the summer of 2003. I had a really bad pain in my knees and contacted my doctor. She took a lot of tests and found really high rheumatological markers in my blood. So she sent me too our local hospital and one of our topp profe...
Sjogren stories
I started with symptoms at age 17. Doctors would blame it on hormones and blow it off. I finally asked my nurse practitioner to refer me to a rheumatoligist. She did and I was tested for Sjogren's. My bloodwork seems to show Lupus also, but I do not ...

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Statistics of Sjogren

55 people with Sjogren have taken the SF36 survey. Mean of Sjogren is 1238 points (34 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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