A Small Fiber Neuropathy interview .

Glecia's interview


How did all start?

Formigamento, dormência, queimação e choques membros inferiores

Do you already have a diagnosis? How long did it take you to get it?

indeterminado Meu diagnóstico é neuropatia de fibras pequenas devido a Gamopatia Monoclonal de Significado (MGUS)

For what medical specialties have you been treated? What has been the most useful specialty for your?

Neurologia e Imunologia

What has been the most useful thing for you so far?

Descobrir que tenho neuropatia devido a Gamopatia Monoclonal (MGUS)

What have been your biggest difficulties?

Encontrar médico que conheça neuropatia periférica

How has your social and family environment reacted? Have your social or family relationships changed?

Sim, não estou mais conseguindo trabalhar. Estou em licença médica e não tenho condições físicas de trabalhar.

What things have you stopped doing?

Exercer minha profissão. Trablahar fora de casa

What do you think about the future?

Preocupante porque a polineuropatia periférica é uma condição degenerativa e as opções de tratamento são limitadas e custam muito caros. Companhias de seguro não liberam tratamentos com facilidade.

So far, which years have been the best years in your life? What have you done during them?

Período anterior ao aparecimento de meus problemas de saúde

What would you like to do if you didn’t have your condition?

Estudar mais. Fazer outra faculdade.

If you had to describe your life in a sentence, what would it be?

Sofrimento em excesso

Finally, what advice would you give to a person in a similar situation?

Não sei o que diria porque não vejo possibilidade de novos tratamento ou descobertas que ajudem pessoas com diagnóstico de polineuropatia de fibras finas nos próximos dez anos

Interview Small Fiber Neuropathy

Aug 5, 2018

By: Glecia

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