Help us to help more people
  2. Spinal Muscular Atrophy
  3. Advice
I try to maintain a healthy lifestyle
by Sasha Kirkland
Salbutamol has increased my stamina levels.
by Vitor
At the earliest possible age, Chloe was given a wheelchair to encourage arm usage. To this day Chloe still has good arm strength.
by Chloe
Always asserting and claiming my human rights
by Glee
I'm very pro active in my health and do things preemptively (stretches, chest physio etc)
by Crystal Rondeau
мой сын Елисей делает меня сильнее с каждым днем
by Надежда
Stress reduction
by Carl
cought assist
by Hajar
care of me my mother
by Monika
Hydrotherapy
by Bradley Family (Cynan&Baby Lugus)
Для сына Артёма готова на всё. Вместе мы сильны!
by Артём
summer
by Евгений Шаповаленко
Український реестр пацієнтів зі СМА http://csma.org.ua:8080/
by Children with SMA, Foundation
Connected with good genetics team to assist with future pregnancies
by Michael
It's not a "disease"; it's a "condition": Clean up your mental fog and embrace it!!
by Pradeep
I have an organization which has members with SMA
by Robert
My family and their support
by rachel
I received acupuncture treatments.
by Therese
eating what i want
by Cherie
Bipap
by Marni
Painting I'm able escape reality for awhile and go into my own world
by Brittany
Being strong willed and stubborn
by Lori
Love
by Dionne
Do as much as you can for yourself, as early/young as you can, and you'll end up independent much longer. Mentally, physically, emotionally, psychologically.
by Jeremy
My parents that take care of me 24/7
by Petra
Wake up with a smile.
by Silvia
Finding out exercise is ok
by irh - mom of 15 year old with sma 3
Aspiration doing to
by Ksenia
Im always advocating for my daughter, do proper research and present data to her doctors; I have a background (Master's) in Molecular Genetics
by Verónica Brotons
I so much wish walking
by Arturs
Physio is painful, but sooo necessary!
by Jennie
Started her on the NIV protocol at 18 months
by Tbear020762
Blessed to have two wonderful daughters.
by Elena Gabriela
I can still go alone and that's what I enjoy, even if it is at small distances.
by Virginia
Любовь близких
by Alexandra
Любящая мама
by Мария
O v pap e o cough assist ajudam a não ficar doente...
by Diogo castro
Physiotherapy helping keeping muscle strong and practice good balance
by Melvil Vedrenne-cloquet
Try to lower stress
by Christy Simpson
The doctors at the hospital take wonderful care of me
by Grady Landrum
Getting a trilogy 100 vent helped me breathe better and I don't feel as exhausted
by Kristen
Moje jedino
by Gabrijel
My Family
by Thanos
Blended diet has helped with several stomach related issues (constipation, reflux etc)
by Andy czerwinski
Never thinking I cant do something. Just finding a different way to do things. Having 3 children kept me on my toes too.
by Dawn
We were once determined we would not trach . . . traching has been the best decision made
by Stella
Learned early to fight for myself and others
by Ellyn
Talk about having a disability with disabled friends on internet
by Mila
Talk about having a disability with disabled friends on internet
by Mila
Believe in God
by Julio