I'm SMA type 0

Jan 22, 2016


My son Grady was born on May 15th 2015. He wasn't due until June 19th but since I had polyhydraminos my water broke on May 13th. I had noticed while I was pregnant that Grady didn't move near as often or as much as my daughter did during my first pregnancy. The doctors told me it was because I had so much fluid that I wouldn't feel as much movement. The moment Grady was born he had no muscle tone whatsoever, the doctors said he was just being lazy since he was early. We found out on May 27th after several tests that Grady had SMA and most likely it is SMA 0 since I had decreased movement while I was pregnant. 

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