Stories of Stargardt Disease

Stargardt Disease stories
My grandson was,after many tests, diagnosed with Stargardts disease. What a shock to parents and grandparents! At first we tried to keep him in a mainstream school, bur this did not work out. The school still persisted with the isea that he had to wr...
Stargardt Disease stories
Even before I knew I had disabilities, I have always focused on my abilities and that will never change. Just out of high school I joined the National Guard. After fifteen years, and attaining the rank of Master Sergeant (E-8) as The Senior Instructo...
Stargardt Disease stories
Hello everyone my name is Heather and I have stargardt'. I started to notice changes in my vision when I was 16 years old I was diagnosed at the age of 19 I am now 29 years old and a mother of 4. At the age of 21 my vision was 20/400 in both eyes. ...
Stargardt Disease stories
I have two daughters with stargardts both been diagnosed at moorfields . 18 year and 7 year old . 18 year old was diagnosed when she was 8 after being told for 2 years her eye sight was fine and she is seeking attention. Now stargardts is and always ...
Stargardt Disease stories
Had symptoms since I was fine years old. Got maculopathy diagnosis in 2001. In 2011 stargardt diagnosis was confermed with gene testing. 

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Statistics of Stargardt Disease

3 people with Stargardt Disease have taken the SF36 survey. Mean of Stargardt Disease is 2013 points (56 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Stargardt Disease

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