Advice of Stevens Johnson Syndrome

Feel appart from that

by Nabil

Familia y amigos

by Karen

Familie Freunde

by Wiens

Magic Mouth Wash for my mouth

by Jo

Deje de tomar ese medicamento que me estaba ocasionaldo ese mal

by Rosy

My friends and family support

by Theresa

Serum tears from Vital Tears

by Jtolles

tener a especialistas que supieran como tratar la enfermedad, infectologos, intensivistas, pediatras, neurocirujanos, oftalmologos, cirujanos plasticos, enfermeras de UCI.

by Jennifer Katherine Acan Vanegas Cajina

taking it one day at a time and not get down on myself when I need to rest

by Rebecca

Eating good and keeping my energy up

by Riley

Volunteering at the Burn Unit that treated me!

by Lorna Perry

The power of prayers

by Jill Bouse

chosing friends wisely

by Amy

Share your story but don't dwell & don't think you know all because you've been through it. SJS is unique to everyone, from the cause to the actual illness to the lasting effects. Share, but learn.

by Jody

Helping other families that are dealing with SJS

by Lorraine

Stay positive. It's a LONG process and it takes a long time to recover from this. Remain in good spirits.

by Khaliah

Godly Friends and living for Christ!

by Kirsten

Finally having a diagnosis so I can get the correct treatment

by Sophie

Finding peers (parents and survivors) from internet (stevens johnsson syndrome groups)

by Pirjo

learning about pharmacology. being allert

by Lena

Learning as much as possible about my illnesses so I can advocate for myself.

by Stephanie

Living without fear

by Michelle

My wife (to be) has made me stubborn enough to beat the disease

by Robin

Reminding myself it could have been worse

by Josie

Doctors gave me a 15% chance to survive.

by NormNorm22

Follow up care

by Debbie

Need some medical help

by Nabil

Need some medical help

by Nabil

Trabajo y baile

by Karen

Positiv denken.

by Wiens

Restasis Eye drops for my eyes

by Jo

La alimentación es muy importante, pues deje de comer grasas leche, de vaca y azucares

by Rosy

Support from my doctor

by Theresa

Anti inflammatory diet

by Jtolles