19

Is it easy to find a partner and/or maintain relationship when you have Stevens Johnson Syndrome?

People with experience in Stevens Johnson Syndrome give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Stevens Johnson Syndrome. What are the possible difficulties in having a relationship?

Couple and Stevens Johnson Syndrome

Is it easy to find a partner and/or maintain a relationship when you have Stevens Johnson Syndrome?


Finding a partner and maintaining a relationship can be challenging for anyone, and having a medical condition like Stevens Johnson Syndrome (SJS) can add an extra layer of complexity. SJS is a rare and severe skin reaction that can cause significant physical and emotional distress. It is important to approach this topic with sensitivity and understanding, as each individual's experience may vary.


Challenges in finding a partner:


When it comes to finding a partner, individuals with SJS may face certain challenges:



  • Physical appearance: SJS can cause visible skin damage, scarring, and changes in pigmentation. Some individuals may feel self-conscious about their appearance, which can affect their confidence in social situations, including dating.

  • Health concerns: SJS can have long-term health implications, such as eye problems, respiratory issues, and joint pain. These health concerns may require ongoing medical treatment and monitoring, which can impact a person's ability to engage in certain activities or maintain a regular routine.

  • Emotional impact: SJS can have a profound emotional impact on individuals, leading to feelings of anxiety, depression, or low self-esteem. These emotional challenges may affect one's ability to initiate or sustain a romantic relationship.


Strategies for finding a partner:


While finding a partner may present unique challenges for individuals with SJS, there are strategies that can help:



  • Self-acceptance: It is crucial to develop self-acceptance and embrace one's own unique beauty, both inside and out. Building self-confidence can make a person more attractive to potential partners.

  • Open communication: When entering a new relationship, it is important to have open and honest communication about SJS. Educating a partner about the condition, its impact, and any specific needs or accommodations can foster understanding and empathy.

  • Support networks: Building a strong support network of friends, family, or support groups can provide emotional support and guidance. These networks can also offer opportunities to meet new people who may be more understanding and accepting of the challenges posed by SJS.

  • Online dating: Utilizing online dating platforms can be a helpful way to connect with others who may be more accepting and understanding of medical conditions. These platforms allow individuals to disclose their condition upfront, reducing potential misunderstandings or rejections later on.


Maintaining a relationship:


Once in a relationship, individuals with SJS may face additional considerations to maintain a healthy and fulfilling partnership:



  • Communication: Open and ongoing communication with a partner is crucial. This includes discussing any limitations or challenges posed by SJS, as well as expressing emotional needs and concerns.

  • Empathy and understanding: A supportive partner who demonstrates empathy and understanding can make a significant difference. It is important to find someone who is willing to learn about SJS, offer emotional support, and adapt to any necessary lifestyle changes.

  • Self-care: Prioritizing self-care is essential for individuals with SJS. This includes managing stress, maintaining a healthy lifestyle, and adhering to any prescribed medical treatments. Taking care of oneself can positively impact the overall well-being of both partners.

  • Seeking professional help: If the emotional impact of SJS becomes overwhelming, seeking professional help from therapists or support groups can provide valuable guidance and support for both individuals in the relationship.


Conclusion:


While having Stevens Johnson Syndrome may present unique challenges in finding and maintaining a relationship, it is important to remember that love and connection are possible for everyone. By focusing on self-acceptance, open communication, and building a strong support network, individuals with SJS can increase their chances of finding a partner who understands and supports them. With empathy, understanding, and a commitment to self-care, it is possible to cultivate a fulfilling and loving relationship.


Diseasemaps
3 answers
Translated from spanish Improve translation
For me it was never a problem

Posted Oct 4, 2017 by Yolika 2000
Translated from spanish Improve translation
if he loves you of truth will be with you always and will be an important factor to boost your recovery.
Also you must be patient as there are damaged organs that will allow you to get back to normal after some time or will be sequels.

Posted Oct 16, 2017 by Karen 3550

Couple and Stevens Johnson Syndrome

Stevens Johnson Syndrome life expectancy

What is the life expectancy of someone with Stevens Johnson Syndrome?

7 answers
Celebrities with Stevens Johnson Syndrome

Celebrities with Stevens Johnson Syndrome

1 answer
Is Stevens Johnson Syndrome hereditary?

Is Stevens Johnson Syndrome hereditary?

5 answers
Is Stevens Johnson Syndrome contagious?

Is Stevens Johnson Syndrome contagious?

7 answers
Natural treatment of Stevens Johnson Syndrome

Is there any natural treatment for Stevens Johnson Syndrome?

5 answers
ICD9 and ICD10 codes of Stevens Johnson Syndrome

ICD10 code of Stevens Johnson Syndrome and ICD9 code

4 answers
Living with Stevens Johnson Syndrome

Living with Stevens Johnson Syndrome. How to live with Stevens Johnson Synd...

5 answers
Stevens Johnson Syndrome diet

Stevens Johnson Syndrome diet. Is there a diet which improves the quality o...

4 answers

World map of Stevens Johnson Syndrome

Find people with Stevens Johnson Syndrome through the map. Connect with them and share experiences. Join the Stevens Johnson Syndrome community.

Stories of Stevens Johnson Syndrome

STEVENS JOHNSON SYNDROME STORIES
Stevens Johnson Syndrome stories
I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...
Stevens Johnson Syndrome stories
I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
Stevens Johnson Syndrome stories
I WAS IN A CONSTRUCTION ACCIDENT AND BLEW MY KNEES OUT WHERE THEY WERE BONE ON BONE I RECEIVED 3 INJECTIONS OF EUEFLEUX SHOTS AND AFTER THE SECOND SHOT I BROKE OUT WITH BLISTERS AND HIVES NOBODY KNEW WHAT THEY WERE I WAS TREATED FOR THREE AND A HALF ...
Stevens Johnson Syndrome stories
Callum had SJS twice in 2013 at the age of 7. We still have no definite trigger 
Stevens Johnson Syndrome stories
My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...

Tell your story and help others

Tell my story

Stevens Johnson Syndrome forum

STEVENS JOHNSON SYNDROME FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map