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How do I know if I have Stevens Johnson Syndrome?

What signs or symptoms may make you suspect you may have Stevens Johnson Syndrome. People who have experience in Stevens Johnson Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Stevens Johnson Syndrome?

How to Identify Stevens-Johnson Syndrome


Stevens-Johnson Syndrome (SJS) is a rare but serious condition that affects the skin and mucous membranes. It is usually caused by a reaction to certain medications or infections. SJS can be life-threatening, so it is important to be able to recognize the signs and symptoms. Here are some key indicators to help you identify if you have Stevens-Johnson Syndrome:



Skin Rash


One of the most prominent symptoms of SJS is a severe skin rash. This rash often starts as red or purple spots, which then develop into blisters. The rash can be painful and may spread rapidly, affecting large areas of the body. It typically begins on the face and trunk before spreading to other parts, such as the arms and legs.



Mucous Membrane Involvement


In addition to the skin, SJS also affects the mucous membranes of the body. This includes the lining of the mouth, nose, eyes, and genitals. You may experience burning or itching sensations in these areas, followed by the development of painful sores or ulcers. Swelling and redness of the eyes, along with discharge, are common symptoms as well.



Flu-like Symptoms


Before the rash and mucous membrane involvement, individuals with SJS may experience flu-like symptoms. These can include fever, sore throat, cough, and body aches. These initial symptoms are often mistaken for a common viral infection, making it crucial to pay attention to any subsequent skin or mucous membrane changes.



Blistering and Skin Peeling


As the condition progresses, the blisters on the skin may rupture and cause the top layer of skin to peel off. This can leave raw, painful areas that resemble severe burns. The skin may appear moist and shiny, and it is important to seek medical attention immediately if you notice these symptoms.



Systemic Involvement


SJS is not limited to the skin and mucous membranes; it can also affect other organs and systems in the body. Systemic involvement may manifest as symptoms such as headache, fatigue, joint pain, and general malaise. In severe cases, there may be involvement of the respiratory and gastrointestinal systems, leading to difficulty breathing, swallowing, or even organ failure.



Medical Evaluation


If you suspect you may have Stevens-Johnson Syndrome, it is crucial to seek immediate medical evaluation. SJS is a medical emergency that requires prompt diagnosis and treatment. A healthcare professional will examine your symptoms, review your medical history, and may conduct additional tests to confirm the diagnosis.



Do not attempt to self-diagnose or treat SJS. Early intervention and medical care are essential to minimize complications and improve outcomes.



Remember, Stevens-Johnson Syndrome is a rare condition, but if you experience a severe skin rash, mucous membrane involvement, flu-like symptoms, blistering, or systemic symptoms, it is important to consult a healthcare professional promptly.


Diseasemaps
3 answers
Translated from spanish Improve translation
Usually appear light the skin, which end up breaking, are burns, eye discharge, yagas in the mucous fever , urgency, running, and always that this an eye doctor near.

Posted Oct 4, 2017 by Yolika 2000
Translated from spanish Improve translation
If you took any medication or eaten something and have symptoms of poisoning, which get worse and added others such as, severe pain when swallowing, bowel movements, urinating, infection, aggressive in the eyes, the face is inflamed to the point that the lips can rupture, staining purple or pink in the skin and ampoules.

Posted Oct 16, 2017 by Karen 3550

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I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...
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I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
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I WAS IN A CONSTRUCTION ACCIDENT AND BLEW MY KNEES OUT WHERE THEY WERE BONE ON BONE I RECEIVED 3 INJECTIONS OF EUEFLEUX SHOTS AND AFTER THE SECOND SHOT I BROKE OUT WITH BLISTERS AND HIVES NOBODY KNEW WHAT THEY WERE I WAS TREATED FOR THREE AND A HALF ...
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Callum had SJS twice in 2013 at the age of 7. We still have no definite trigger 
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My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...

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