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What is the life expectancy of someone with Stevens Johnson Syndrome?

Life expectancy of people with Stevens Johnson Syndrome and recent progresses and researches in Stevens Johnson Syndrome

Stevens Johnson Syndrome life expectancy

Stevens-Johnson Syndrome (SJS) is a rare and severe skin condition that can also affect mucous membranes. It is characterized by a painful rash, blisters, and peeling skin. SJS is a medical emergency that requires immediate treatment and hospitalization. The prognosis for individuals with SJS depends on various factors, including the extent of skin involvement and the presence of complications. While SJS can be life-threatening, early diagnosis and prompt medical intervention can significantly improve outcomes. It is crucial to seek medical attention if you suspect SJS or have been diagnosed with it. Consulting with healthcare professionals is essential for accurate information and personalized guidance regarding life expectancy and treatment options.



Stevens-Johnson Syndrome (SJS) is a rare and severe disorder that affects the skin and mucous membranes. It is often triggered by an adverse reaction to certain medications or infections. SJS is characterized by a painful rash that quickly spreads and causes the top layer of the skin to detach from the lower layers. This condition can be life-threatening and requires immediate medical attention.



The prognosis and life expectancy of individuals with Stevens-Johnson Syndrome can vary depending on several factors, including the severity of the condition, the underlying cause, and the promptness of medical intervention. It is important to note that SJS is a medical emergency, and early recognition and treatment significantly improve the chances of survival.



The acute phase of Stevens-Johnson Syndrome typically lasts for a few weeks. During this period, patients may experience intense pain, blistering, and shedding of the affected skin. The condition requires specialized care in a burn unit or intensive care setting. Treatment involves the immediate discontinuation of the causative medication, if applicable, and meticulous wound care to prevent infection. Intravenous fluids, pain management, and supportive measures are also provided to stabilize the patient.



Complications arising from SJS can be severe and life-threatening. One such complication is sepsis, a potentially fatal infection that can occur due to the compromised skin barrier. Sepsis requires aggressive treatment with antibiotics and other supportive measures. Another complication is respiratory involvement, which can lead to difficulty breathing and necessitate the use of a ventilator. Additionally, ocular complications may arise, such as conjunctivitis, corneal ulcers, or even blindness. These complications require specialized ophthalmological care.



Long-term prognosis for individuals who survive the acute phase of SJS depends on the extent of skin and organ involvement. Some patients may experience scarring and changes in skin pigmentation that can persist for months or years. The severity of these long-term effects varies among individuals. In cases where the mucous membranes are extensively affected, long-term complications can include difficulty swallowing, chronic dry eyes, and genital or urinary complications.



It is important to note that early diagnosis and prompt treatment significantly improve the prognosis for individuals with Stevens-Johnson Syndrome. Timely medical intervention can help minimize the extent of skin and organ involvement, reduce the risk of complications, and improve overall outcomes.



In conclusion, Stevens-Johnson Syndrome is a severe and potentially life-threatening condition. The prognosis and life expectancy of individuals with SJS depend on various factors, including the severity of the condition, the underlying cause, and the promptness of medical intervention. Surviving the acute phase of SJS is crucial, and long-term complications can vary among individuals. Early diagnosis, immediate discontinuation of causative medications, and specialized medical care significantly improve the chances of survival and minimize long-term effects.


Diseasemaps
6 answers
I don't know but I believe with the right treatment someone with sjs can live a full normal life

Posted Feb 24, 2017 by Sophie 1150
It simply depends on the case. Some are much more severe than others & still live a long life; some progress quickly, some slowly, some take a quick turn. I personally was in an induced come & my family called in to say their goodbyes as it was thought I wouldn't survive the night. Here I am, 6 years later. Many SJS/TEN patients come out of the event rather unscathed & there are many others who end up dealing with other significant issues. SJS itself is an autoimmune disease, not simply an allergy in itself. As such, AI's often beget more AI's. A big issue with this in SJS-land is that the patients associate their later symptoms with their SJS incident. Although SJS may have triggered more disease(s) into action, it is not specifically the cause of those symptoms. Patients often get turned away by their SJS doctors because these new symptoms don't fit the profile --when they should be referred to other specialists, such as a rheumatologist for bone & joint pain, for example.

Posted Dec 31, 2017 by Christine 400
I had severe SJS in 1966 as an 11 year old child. Little was known about it at the time and I the doctors treated me with the new drug cortiszone. I spent 5 weeks in hospital in isolation. It was a slow journey to total recovery, but here I am 54 years later, having lead a full and normal life with two wonderful daughters and 3 amazing grandchildren - proof that life expectancy is good

Posted Jan 17, 2020 by Pauline 100
Translated from spanish Improve translation
According to the case, but normally good , but fighting everyday

Posted Oct 4, 2017 by Yolika 2000
Translated from spanish Improve translation
If the disease is attended to in time and correctly, it is sure that the person is saved and the recovery, although it is difficult and long, can provide nearly complete. It all depends on you

Posted Oct 16, 2017 by Karen 3550

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STEVENS JOHNSON SYNDROME STORIES
Stevens Johnson Syndrome stories
I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...
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I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
Stevens Johnson Syndrome stories
I WAS IN A CONSTRUCTION ACCIDENT AND BLEW MY KNEES OUT WHERE THEY WERE BONE ON BONE I RECEIVED 3 INJECTIONS OF EUEFLEUX SHOTS AND AFTER THE SECOND SHOT I BROKE OUT WITH BLISTERS AND HIVES NOBODY KNEW WHAT THEY WERE I WAS TREATED FOR THREE AND A HALF ...
Stevens Johnson Syndrome stories
Callum had SJS twice in 2013 at the age of 7. We still have no definite trigger 
Stevens Johnson Syndrome stories
My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...

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