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What is the prevalence of Stevens Johnson Syndrome?

How many people does Stevens Johnson Syndrome affect? Does it have the same prevalence in men and women? And in the different countries?

Prevalence of Stevens Johnson Syndrome

Stevens-Johnson Syndrome (SJS) is a rare but severe disorder that affects the skin and mucous membranes. It is estimated to occur in approximately 1 to 6 cases per million people annually worldwide. Although considered rare, SJS can have life-threatening consequences, making early recognition and prompt medical intervention crucial. The condition is often triggered by certain medications or infections. SJS requires immediate medical attention and hospitalization. If you suspect SJS, seek medical help immediately.



Stevens-Johnson Syndrome (SJS) is a rare but serious disorder that affects the skin and mucous membranes. It is characterized by a severe and potentially life-threatening reaction, often triggered by certain medications or infections. The prevalence of SJS varies across different populations and regions.


While it is challenging to provide an exact prevalence rate, studies suggest that the incidence of SJS is estimated to be around 1 to 6 cases per million people per year. However, the prevalence may be higher in certain ethnic groups, such as individuals of Asian descent, where rates of up to 10 cases per million people per year have been reported.


It is important to note that SJS is considered a rare condition, but its potential severity and impact on individuals make it a significant concern in healthcare. Prompt recognition, early intervention, and avoidance of known triggers are crucial in managing this condition and minimizing its complications.


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3 answers
Translated from spanish Improve translation
Is unknown. One in a million

Posted Oct 4, 2017 by Yolika 2000
Translated from spanish Improve translation
The prevalence of this syndrome is 1 in a million, being more frequent in children and young people. Males are two times more likely than females.

Posted Oct 16, 2017 by Karen 3550

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Stories of Stevens Johnson Syndrome

STEVENS JOHNSON SYNDROME STORIES
Stevens Johnson Syndrome stories
I got SJS/TENS from taking lamictal. I was in the ICU burn unit at Grady hospital in Atlanta for 7 weeks. 5 of those I was in a medically induced coma. I lost 90% of my skin, all my hair and fingernails. My skin has come back mostly without scars. Ho...
Stevens Johnson Syndrome stories
I had gone to one hospital with a severe rash, I met a physician who know exactly what this was. I was transfered to the Burn Unit, where I received an active coat treatment and my body wrapped in guaze. With IV medication and constant lotion applied...
Stevens Johnson Syndrome stories
I WAS IN A CONSTRUCTION ACCIDENT AND BLEW MY KNEES OUT WHERE THEY WERE BONE ON BONE I RECEIVED 3 INJECTIONS OF EUEFLEUX SHOTS AND AFTER THE SECOND SHOT I BROKE OUT WITH BLISTERS AND HIVES NOBODY KNEW WHAT THEY WERE I WAS TREATED FOR THREE AND A HALF ...
Stevens Johnson Syndrome stories
Callum had SJS twice in 2013 at the age of 7. We still have no definite trigger 
Stevens Johnson Syndrome stories
My granddaughter had TEN a year ago. She had a rash that was diagnosed as Scarlett fever. After 24hours she wasd admitted to our local emergency ward. She was diagnosed with SJS within a few hours and transferred to Evelina London. The care she had t...

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