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Is it advisable to do exercise when affected by Stiff Person Syndrome? Which activities would you suggest and how intense should they be?

See if it is advisable for people with Stiff Person Syndrome to practice sports and which ones are the most recommended if you have Stiff Person Syndrome

Stiff Person Syndrome sports

Stiff Person Syndrome (SPS) is a rare neurological disorder characterized by muscle stiffness and spasms. It can significantly impact a person's mobility and quality of life. While exercise may seem counterintuitive for individuals affected by SPS, it can actually be beneficial in managing symptoms and improving overall well-being.



Before engaging in any exercise program, it is crucial for individuals with SPS to consult with their healthcare provider or a physical therapist. They can provide personalized guidance based on the individual's specific condition and limitations. The intensity and type of exercise will vary depending on the severity of symptoms and overall physical health.



Low-impact aerobic exercises are generally recommended for individuals with SPS. These exercises help improve cardiovascular fitness, muscle strength, and flexibility without putting excessive strain on the joints. Some suitable low-impact exercises include:




  • Walking: Walking is a great way to improve cardiovascular health and maintain muscle tone. Start with short distances and gradually increase the duration and intensity as tolerated.

  • Swimming: Swimming and water aerobics are excellent options as they provide resistance without putting stress on the joints. The buoyancy of water can also help reduce muscle stiffness and spasms.

  • Cycling: Stationary or recumbent cycling can be beneficial for individuals with SPS. It helps improve leg strength and cardiovascular fitness while minimizing impact on the joints.

  • Yoga and Pilates: These gentle forms of exercise focus on stretching, balance, and core strength. They can help improve flexibility and reduce muscle stiffness.



Stretching exercises play a crucial role in managing muscle stiffness and maintaining range of motion. It is important to perform stretches regularly, but gently, to avoid triggering spasms. Some recommended stretches for individuals with SPS include:




  • Neck stretches: Slowly tilt the head to each side, forward, and backward to stretch the neck muscles.

  • Shoulder stretches: Gently roll the shoulders backward and forward, and perform arm circles to improve shoulder mobility.

  • Hamstring stretches: Sit on the edge of a chair and extend one leg forward, keeping the knee straight. Lean forward slightly to stretch the hamstring.

  • Calf stretches: Stand facing a wall, place one foot forward, and lean against the wall with the knee straight. This stretches the calf muscles.



Strength training exercises can help improve muscle tone and overall strength. However, it is important to start with light weights and gradually increase the intensity as tolerated. Some suitable strength training exercises for individuals with SPS include:




  • Resistance band exercises: These exercises involve using elastic bands to provide resistance for muscle strengthening. They can be performed while sitting or lying down, making them accessible for individuals with limited mobility.

  • Bodyweight exercises: Exercises such as squats, lunges, and modified push-ups can help improve muscle strength without the need for additional equipment.

  • Weight machines: If available, weight machines can be used to target specific muscle groups under the guidance of a physical therapist or trainer.



Balance and coordination exercises are also important for individuals with SPS, as they can help improve stability and reduce the risk of falls. Some suitable exercises include:




  • Standing on one leg: Stand near a wall or sturdy object for support and lift one leg off the ground. Hold the position for a few seconds and then switch legs.

  • Heel-to-toe walk: Walk in a straight line, placing the heel of one foot directly in front of the toes of the other foot with each step.

  • Balance board exercises: Using a balance board or wobble board can help improve balance and coordination.



It is important to note that exercise should be approached with caution and tailored to the individual's abilities and limitations. It is advisable to start slowly and gradually increase the duration and intensity of exercise sessions. Listening to the body and taking breaks when needed is essential to prevent overexertion and exacerbation of symptoms.



In addition to exercise, individuals with SPS may benefit from other forms of therapy such as physical therapy, occupational therapy, and medication management. These therapies can be used in conjunction with exercise to optimize symptom management and improve overall function.



Always consult with a healthcare professional before starting any exercise program, especially if you have a medical condition like Stiff Person Syndrome. They can provide personalized recommendations and ensure that exercise is safe and appropriate for your specific situation.


Diseasemaps
7 answers
Lifting low weight weights to keep as much strength and flexabilty in muscles as possible.

Posted Feb 28, 2017 by Loretta 1000
It varies. However, rest and exercise are crucial, exercise can be as simple as a walk around the house, using aids if needed. For those able enough, taking the dog for a walk, preferably accompanied for 'just in case'.

Posted Mar 1, 2017 by Liz 1000
I believe it is always best to keep moving. If all you can do is wiggle your toes then wiggle your toes and try to bend your foot.
Exercise will depend on the individual. Short walks daily if possible. Even if wheel chair or bed bound it is important to try to move and stretch all parts of your body (slowly and gently) to prevent some stiffness. Being honest I think that exercise is most beneficial to those with low mobility. With the help of a gentle physical therapist who understands SPS brought me from bed bound to walking through my house without assistance.

Posted Mar 2, 2017 by Michelle 1500
Someone with SPS can do exercise but in moderation and should know their limits otherwise painful spasms, muscle weakness and such.

Posted Mar 4, 2017 by Jasmine Nardone-Franco 1430
Passive stretching as directed by a physical therapist is very helpful. Swimming in warm water is most helpful. Myofascial massage has been a life saver in my case.

Posted Dec 24, 2021 by Pathdoc 2500
Translated from spanish Improve translation
The sport varies according to the evolution. In general, avoid risky sports and running. Swimming is well tolerated, but there is what to be near the places where they do foot, because of the possibility that they trigger spasms.

Posted Sep 18, 2017 by Fernando Vela Vallejo 3250

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