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What is Stiff Person Syndrome

Stiff Person Syndrome description. Find out what Stiff Person Syndrome is and know more about it.

What is Stiff Person Syndrome

Stiff Person Syndrome (SPS) is a rare neurological disorder characterized by muscle stiffness and spasms. It primarily affects the muscles of the trunk and limbs, causing a person to experience stiffness and rigidity, often leading to difficulty with movement. SPS is believed to be an autoimmune disorder, where the body's immune system mistakenly attacks the nerve cells responsible for muscle control.


Individuals with SPS may also experience heightened sensitivity to stimuli such as noise, touch, or emotional stress, which can trigger muscle spasms. The exact cause of SPS is unknown, but it is thought to involve a combination of genetic and environmental factors.


Diagnosis of SPS can be challenging as its symptoms can resemble other neurological conditions. However, certain tests, such as electromyography and blood tests, can help in confirming the diagnosis. Treatment for SPS typically involves a combination of medications to manage symptoms, physical therapy to improve mobility, and psychological support to cope with the impact on daily life.


While there is currently no cure for SPS, ongoing research aims to better understand the condition and develop more effective treatments to improve the quality of life for individuals living with this challenging disorder.


Diseasemaps
2 answers
Thetinman.org has an excellent summary of all forms of SPS, current treatments and a searchable database.

Posted Dec 25, 2021 by Pathdoc 2500

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STIFF PERSON SYNDROME STORIES
Stiff Person Syndrome stories
I am a 68 year old male, born in Scotland but live in Sydney Australia who has lived with back problems since 1973, mid 1986 while holidaying in Oregon I went white water rafting on the Rogue River on an inner tube, unfortunately I was thrown off and...
Stiff Person Syndrome stories
I was misdiagnosed with Lupus in 2009 and finally got the correct diagnosis through GAD testing in Oct 2015. My neurologist, who specializes in SPS, Dr. Machado in Conn is the reason I am alive today along with my children and my husband and family. ...
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Symptoms started very gradually during/after first and only pregnancy in 2004. Full blown symptoms, including stiffness, drooping eyelids and soft palette, vertigo, dizziness, and altered gait by 2008. Diagnosed first with Myasthenia Gravis, and then...
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2009- infectious mononucleosis 2010 - diffuse toxic goiter 2011- endocrine ophthalmopathy 2013 - diabetes type 1 2013 - thyroidectomy 2014 - c-section 2015 - SPS
Stiff Person Syndrome stories
> My name is Stacy Mayle and I'm 47 years old. I was diagnosed with Stiff Person Syndrome (SPS) 4 years ago, after developing symptoms at age 37. It took 10 years to diagnose since it is such a rare disorder. ...

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