Story about Noonan Syndrome .

I'm a fighter!

Dec 31, 2015


i was born premature to a mom who lived a very unhealthy lifestyle so even though I was really small and sick, no one really thought much of it.

soon they had to take it seriously because I was only getting worse not better.  The older I got,  the more they found wrong with me.  I lived my first 17 months of life in hospital.  I was removed firm my parents custody so I was always alone during that time.  It made me very scared and mistrusting of everyone!!

Finally I got transferred to a smaller hospital where I met my new mom.  She was a nurse there.  A medical foster family took me home but I almost died after only a few days with them.  My mom was a specialized foster parent who took home children who were expected to die, but I didn't die at her home I just kept getting better!!

after a few years they asked my mom if she would adopt me :)

i have SHOC2, I'm really smart but I can't talk:  I know American Sign Language instead,  some signs I adapted myself because my hands can't form those complicated poses!

i am a jokester and happy.  I have a little foster sister who I like to boss around even though she's bigger than me, and two grown up brothers who will mess you up badly if you make me cry!! 

 

Know someone who should read this story? Share it

1 comment
0

Thank you for sharing your story! 

Commented 8 years ago Sarah 13

Login or register to leave a comment


Couple and Noonan Syndrome

Is it easy to find a partner and/or maintain relationship when you hav...

Do I have Noonan Syndrome?

How do I know if I have Noonan Syndrome?

Noonan Syndrome jobs

Can people with Noonan Syndrome work? What kind of work can they perfo...

Noonan Syndrome cure

Does Noonan Syndrome have a cure?

Noonan Syndrome symptoms

Which are the symptoms of Noonan Syndrome?

Noonan Syndrome diagnosis

How is Noonan Syndrome diagnosed?

Noonan Syndrome treatments

What are the best treatments for Noonan Syndrome?

ICD9 and ICD10 codes of Noonan Syndrome

ICD10 code of Noonan Syndrome and ICD9 code