Living with APS and lupus

---

Hi my name is Tracy I'm 49 yrs old .. Just over 2 yrs ago I woke at 5am with cramp in my calf wasn't able to weight bare on it so gp told me to rest.. 2 days later it swelled up and was red n painful so husband took me to A&E had blood done came bk positive for a clot but the sent me home for me to arrange with my gp a dloper scan so had that 2 days later couldn't find a clot so went bk a day later had leg put in plaster .. 4 days later was struggling to breath so was taken by ambulance to A&E had tests n scans done was then to be told I had bilateral PEs several DVTs Collapsed lung pneumonia n plurisey was in hospital for over 3 weeks and was told I was lucky to be alive if I was left another 24 hrs I would not be here today.. I came home from hospital on just warfrian they said would b for life then yr later my rhymotoligist told me I had APS and 4 months ago lupus plus 6 wks ago I had a stroke and since the stroke I'm having seizures... I take a lot of medication warfarin to thin the blood and try to get in range with INR weekly test but never get above 2 my range is 3-5 this week I was 1.2 and that's on 26mg warfrian and clexane injections I'm on plaquenil 200mg twice daily 200mg pregablin twice a day 175 azothiophine I take oxymoron and servedol for pain .. I take sleeping tablets cramp tablets diazepam table you name it I take it .... Having one desiese is bad enough but fighting 2 at the same time is heartbreaking I'm always ill 24/7 never a good day just wish I could get one condition is remission and fight just one at a time might help to feel normal for once have the energy to live a normal life smile b happy etc .... Anyway enough about me would love to hear from anyone that's either lives in my arera or who would just like to chat ... Thank you for taking your time to read my story n look forward to hearing from any of you xx