Story about Sandhoff Disease .

Little Zoe

Jan 5, 2016


My daughter Zoe was diagnosed Sandhoff at 12 months and now She is 16 months Old. She is beautiful and We love her so much...

Next week We will do g tube to feed her and give meds..I hate this thing, but it is necessary. I hope researchers will find a cure as Soon as possibile, because this desease is really terrible.

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