It take a long time before i had a diagnose. Aboute 5 years ago i went to a new dermatoligist and he searched in books for my condition. At last a answer. Only my skin. Not my muscles yet.
Although i struggle also with muscle loss it's not in the blood.
On metrotrexaat now instead of prednison because i didn't want to blow up again as the last time. But i still have terrible itches.