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Doose Syndrome
Stories
Tobys story
Feb 5, 2016
By:
Tobias
Doose Syndrome
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-febrile TC presentation @ 2 yrs 4 mths, normal development up to diagnosis, no family hx of epilepsy, brother w febrile seizures as baby, resolved
- 5 types: TC, myos, absence, myo astatic, tonics (in order of squantity)
- myos absence and myo astatic controlled first year- Onfi and keto diet
- tonics rare throughout
- nocturnal TCS persist up to present; now plateau at 10-15/mth
- now globally delayed, hypotonia, other behavioral issues
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