Dynelle - I am curious to know when was the earliest that diagnoses were made in New Zealand for CVS? I had never heard of it until September and suffered terribly as a child in the 50s and 60s.
Hello Cynthia, Iâm not sure when the earliest was. I had it in the 70s but suspect my uncle and grandfather had it but were undiagnosed. Now my daughter has it. You are welcome to join our group.