I was only diagnosed in August, which took them 6 months from when I was hopitalised!
I'd initially had severe tonsillitis which penicillin got rid of but this overlapped with other symptoms.
I made repeated trips to the Dr with a sore neck and headaches but was told it was a ripped neck muscle and was put on muscle relaxants and diazepam. This continued for 6 weeks until I lost my hand eye coordination at work and scared everyone as I became very confused. I went straight to A&E where they checked my eyes and a blurred optic nerve was spotted. This led to an MRI scan where they spotted what they thought was bleeding on the brain. A CT scan revealed extensive clotting in my jugular, sigmoid, transverse, saggital and lateral sinuses.
5 days in hospital where I was on clexane for 2 weeks which overlapped with warfarin and I stopped the anticoagulant treatment in November after 10 months. They've said its not worth doing another scan as it'll show no changes until after around 4 years, although my jugular vein clotting has fully cleared with the other sinuses still blocked.
I came down with tonsillitis again a few weeks ago and was given an emergency appointment at the Drs and put straight onto penicillin. The infection cleared with no complications this time.