Story about Dysautonomia / POTS , Multiple Systems Atrophy.

Falling off my toes

Feb 16, 2016

By: Aletta


While I still worked as a ballet dancer and later a ballet teacher (stopped performing at age 35) my dysautonomia symptoms were easily managed, but durubf times when I did not dance they were much more pronounced.  At 32 I had a heart attack due to arrhythmia and I stopped dancing, tool office work and steadily it became worse.  as it turns out the dysautonomia was only a symptom of Multiple System Atrophy a progressive terminal neurodegenerative illness, diagnosed in 2000 and given 2-6 years I have exceeded that expiry date, don't believe everything they tell you/

https://scontent-sea1-1.xx.fbcdn.net/hphotos-xlf1/v/t1.0-0/p206x206/11129899_10153172924046067_1326750796129995299_n.jpg?oh=b1694294548cb61bfdc503378cf9f4fd&oe=5768DFEC

Know someone who should read this story? Share it

1 comment
0

Hi Aletta,  Nice to see you are still keeping on after all these years.  So much is still unknown about MSA and there are so many other disorders that mimic the symptoms. A better way to diagnose MSA and similar disorders is needed so desperately.  

Commented 8 years ago Pam Bower 2952

Login or register to leave a comment


Dysautonomia / POTS jobs

Can people with Dysautonomia / POTS work? What kind of work can they p...

Do I have Dysautonomia / POTS?

How do I know if I have Dysautonomia / POTS?

Is Dysautonomia / POTS hereditary?

Is Dysautonomia / POTS hereditary?

Dysautonomia / POTS symptoms

Which are the symptoms of Dysautonomia / POTS?

Natural treatment of Dysautonomia / POTS

Is there any natural treatment for Dysautonomia / POTS?

Couple and Dysautonomia / POTS

Is it easy to find a partner and/or maintain relationship when you hav...

Dysautonomia / POTS life expectancy

What is the life expectancy of someone with Dysautonomia / POTS?

ICD9 and ICD10 codes of Dysautonomia / POTS

ICD10 code of Dysautonomia / POTS and ICD9 code