Story about Chronic Fatigue Syndrome / M.E. , Fibromyalgia, Myofascial Pain Syndrome.

Govt. interference has screwed me!!!!

May 12, 2016


I have suffered for 35 years. I have been on as many as 10 meds at a time, causing me to be a zombie, sleeping 18 hour days, feeling like a train ran over me every morning. Finally got on Xyrem and it changed my life for 10 years. Now, due to FDA govt. interference, my doc will no longer prescribe it and I am about to go back to having pain 24 hours a day and sleeping 18 hours a day! ANGRY!!!!! I do NOT want govt. healthcare because the govt. has already screwed me over! Why does the govt. get to decide what I can take, and not my doctor???!!!! I am now desperate, and have no hope for the future. I do not know how I will survive another 20 years until I die. I have NO HOPE! Please, someone, do something!  I have Chronic Fatigue Syndrome, Fibromyalgia, Chronic Myofascial Pain, and even two diseases that your web site does not even cover and there is no FDA approved drug for----Idiopathic Hypersomnia, and Periodic Limb Movement Disorder.

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