Story about Primary ciliary dyskinesia .

One in a million!

Dec 23, 2016


I am the mother of an 11 year old girl with katageners. Diagnosed at the age of 6, just by fluke, really. Although, Kalypso had a history of chest infections,  runny noses, coughs - our pediatrician was treating her for asthma and we were told she's a ' wheezy breather'! Holidaying on a small Greek island, a bout of gastroenteritis had Kalypso in a tiny hospital, the only child and a brand new doctor who was pleased to have a patient! They discovered her dextrokardia and after a little look on the Internet, we had a lightbulb moment... We are a Greek - British family living in Thessaloniki. Kalypso is treated at Ippokrateion hospital, and we have contacts at Leeds General Infirmary in the UK. 

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