Story about Vasculitis .

Vasculitis diagnosis non specific p-anca.

Dec 2, 2

By: Louise


March 2015 - developed labyrinthitis, dizzy, vomiting, surreal, couldn't walk without holding walls, couldn't care for my 4 year old twins. Symptoms subsided after about 3-4 weeks but never fully recovered, life felt surreal.

- April - June had vision problems, concentration problems, mild confusion, 24/7 headaches, nausea on and off, dizziness on and off, tinnitus on and off, fatigue, itchy thighs that bruised easily for about a week... Generally felt unwell. Drs gave me loads of different medication to try but we're bemused as nothing made me better.

- July 2015 developed numbness down left of my face into my left hand, was assessed for a stroke, all clear so referred to neurologist. He said neurologically ok but ordered autoimmune and connective tissue blood tests. Blood tests confirmed P-Anca. Referred to rheumatologist who confirmed non -specific p-anca vasculitis. , gave me keragon steroid injection. Had MRI of brain and chest X-ray both clear. rheumy thinks it may subside without treatment so given 3 months before having repeat bloods. Still have headaches, nausea, etc he thinks might be mononuretis multiplex whatever that is!
Feel in no mans land with no clear diagnosis or treatment and feel unwell often

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