Story about Arachnoiditis .

HOPE in the Darkness

Apr 10, 2017

By: Elaine


I had a sporting accident aged 21 years and crushed two discs. Had myleogram and airogram which began the severe Degeneration of nerves in spinal cord. After three surgeries managed for several years although discs kep prolaosing. Then in 1994 other discs  degenerated and further nerve damage in spine and right leg and arm. Spent one year in bed then progressed to lounge where I lay down all the time, unable to sit at all or walk much. Over the following years I knew something more was wrong with spine but doctors refused to see me and MRI's get lost. So no medical help or interest. Was so bad in 2014 had another MRI which revealed Arachnoiditis and more disc Degeneration, COPD, Stenosis and CRPS. LOOKING BACK I can see I had Arachnoiditis for many years but hidden from me by consultants 'losing MRI scans. I have to do everything lying flat on my side. Nerve deterioration and chronic and acute pain is 24/7. Every consultant I have seen refuses to see me again as they do not wish to get involved with this disease. This is despite two confirmed diagnosis of Arachnoiditis.  However, after two years of no help from my GP,  he has suddenly realised how serious Arachnoiditis is and is now willing to make me comfortable. There is no cure.  This disease progressed to Adhesive Arachnoiditis and numbness, weakness and dreadful nerve pain are hard to cope with every day. Paralysis has set in both my legs and feet and also my right arm and hand. Some days are extremely difficult and I can only take one moment at a time each day. Suicide and depression knock at my door constantly but I will never give in. My faith is crucial in giving me hope and reaching out to others who are in crisis is my main focus of each day. 

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