Story about Antiphospholipid / Hughes Syndrome .

I hate APS!

May 16, 2017

By: Heather


I had my first experience with a blood clot and 1999. It was behind my left me. I've been ended up with multiple pes throughout my lungs. I felt like I was going to die. Fast forward to 2006 and 6 miscarriages later. I found out that I was pregnant. I was so scared because of my past. I was lucky to be diagnosed at that time with antiphospholipid syndrome. At least I had an answer. It was a rough road and I was only given a 3% chance of carrying my daughter term. I was referred to a high risk OB Loma Linda University Medical Center. Her name was dr. Castro. She saved mine and my child's life in my opinion. I was on Lovenox injections twice a day. I only carried my daughter 26 weeks. I was lucky to carry her that long. I was also positive for the Duffy antibody. It was a horrible experience but the outcome was beautiful. I gave birth to my daughter on May 30th 2007. She was 1 pound 12 ounces. She was in the NICU for a total of three months and came home and thrived. So blessed. She will be 10 and a couple of days and you would never know that she was a preemie. She's five foot five. She's a really tall girl. Should the only lasting effects that she has or her eyes. She wears glasses. But who doesn't anymore? LOL as of now I am on Pradaxa twice a day for the aps. I also take Topamax , Keppra, levothyroxine, Lisinopril and hydrochlorothiazide. Oh and I can't forget my Zoloft! I have sense been diagnosed with aural migraines, which has been causing me to have seizures. I have extreme fatigue. My whole body aches. I have a reason to keep pushing through life though. God kept me here for a reason.

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