Story about Cleidocranial Dysplasia .

Cleidocranial Dysplasia

May 16, 2017

By: Stephanie


I was born with cleidocranial dysplasia. It is a congenital disorder primarily affecting the bones and teeth. I had multiple mouth surgeries through childhood. It's been said I had the sharks equivalent of teeth. I am 30 and due to funds I am still not finished. I have gone without bottom teeth for 12 years. I have no collar bones, a misshapen uterus, minor scoliosis,and problems with my hips and knees. My soft spot never closed fully proper therefore I have a minor dent in my forehead. I passed it on to my youngest  (son) out of 3 kids.

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