Story about Evans Syndrome .

My Evan's syndrome war

May 25, 2017

By: Kelsey


I was diagnosed with Evan's syndrome a little over a year ago . I have been in the hospital with high fevers and bad infections. Had a lot of antibiotics . Also can't take steroids because they cause sever manic episodes . I have had rituxan infusions that have helped for about a year but still had high fever episodes that have landed me in the hospital. Recently I had a sinus infection and went to the emergency room 3 days in a row and got dismissed the first 2 days I went in . The third day they did blood work and a cat scan and the infection in my sinuses was so bad it had completely blocked my sinuses cavities. I spent a week in the hospital and had to have an immunoglobulin infusion and started my second rituxan infusion. My white counts were 0.2 and was in sever pain. I am tired all the time and also have ibs . I get bad migraines. When my counts get low my face breaks out, my gums swell, and usually I get a high fever. 

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Living with Evans Syndrome

Living with Evans Syndrome. How to live with Evans Syndrome?

Evans Syndrome is also known as...

Evans Syndrome synonyms

Evans Syndrome life expectancy

What is the life expectancy of someone with Evans Syndrome?

Natural treatment of Evans Syndrome

Is there any natural treatment for Evans Syndrome?

Is Evans Syndrome hereditary?

Is Evans Syndrome hereditary?

Evans Syndrome symptoms

Which are the symptoms of Evans Syndrome?

ICD9 and ICD10 codes of Evans Syndrome

ICD10 code of Evans Syndrome and ICD9 code

Latest progress of Evans Syndrome

What are the latest advances in Evans Syndrome?