Story about Choroideremia .

my son who is 16

May 29, 2017

By: Gina


We found out he had CHM this year.  has some issues at night  otherwise he is doing pretty well.  we have been to PA to see Dr. Aleman and doing a history study there and in Dallas Tx.  my father was diagnosed with RP 40 some years ago...secere night blindness and limited tunnel vision.  he is being tested for CHM as we think he was misdiagnosed 

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Hello my friends,

here is Michael from Germany. Are you in contact with the CRF our organization in the states?

they can give you a lot of information or check our homepage.

have a nice evening

 

 

Commented 6 years ago Michael Längsfeld 110

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