Story about Tracheobronchomalacia , Prinzmetal Angina.

Tracheobronchomalacia

Jun 12, 2017

By: Cher


I started haveing hypoxia and was oxygen dependent after a surggery in 3010 when  during rt lung totally collapsed and lt on partially. I also have COroanry Artery Spams(CAS) and Coronary MICROVASCULAR DISEASE (MVD)  they became much worse. fro 2010-2012 several physicians attamped to treat me in Colorado Springs but I was getting worse. I was then sent to Mato AX and May MN, They managed to get angian to slow down but faile dto identify they hypoxia cause. By this time I was also having severe Hypertention spikes.  I was unabl to fly back and forth after diverting airplane in 2014. I went all the way up the chain of physicians at University Coorado in Denver and they foudn I also had Fribermuscualr DYsplasia (FMD) so they did angio on renal arteries and nwo track that. But they referred me to National Jewish Heaalth (NJH) in 2015. BY this tiem at tiem sI was on 7-10 liters of oxygen and in and out of hospital many times. NJH determiend I had Tacheobroncheomalacia (TBM)  and perfromed Trachobronchoplasty dec 2015.  I was able to get off oxygen for much of the day time for a while but Oct 2016 started having worsening hypoxia, angina, adn dec STEMI. I went from CPAP to BiPAP ASV. SO the final piece is now falling into place 4 physicians beleive that I have Relapsing Polychronditis (RP) which  affetcs cartilidge & connective tissue it is autoimmune. So I am nto your typical TBM patient. RELAPSING POLYCHONDRITIS is a multi-systemic condition characterized by inflammation and deterioration of cartilage. The often painful disease can cause joint deformity and be life-threatening if the respiratory tract, heart valves or blood vessels are affected.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Is Tracheobronchomalacia hereditary?

Is Tracheobronchomalacia hereditary?

Tracheobronchomalacia symptoms

Which are the symptoms of Tracheobronchomalacia?

Prevalence of Tracheobronchomalacia

What is the prevalence of Tracheobronchomalacia?

Tracheobronchomalacia jobs

Can people with Tracheobronchomalacia work? What kind of work can they...

Couple and Tracheobronchomalacia

Is it easy to find a partner and/or maintain relationship when you hav...

Tracheobronchomalacia prognosis

Tracheobronchomalacia prognosis

Latest progress of Tracheobronchomalacia

What are the latest advances in Tracheobronchomalacia?

Tracheobronchomalacia treatments

What are the best treatments for Tracheobronchomalacia?