Story about CHARGE Syndrome , Scoliosis.

NICHOLAS

Jul 25, 2017

By: Angela


My son was born in 1998. He has CHARGE - diagnosed within 24 hours and a whole list of additional issues they initially thought was Chromozone 6 Ring Syndrome.. After almost 100 surgical interventions - including 2 HEART, 2 eye, etc.. He is living in an independant full sstaffed living facility - his own apartment with 2 other Deaf- Blind individuals. YES he is Deaf- Blind - add it to the list. We are so thankful to CDBA ONTRIO and all their support

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


CHARGE Syndrome life expectancy

What is the life expectancy of someone with CHARGE Syndrome?

Do I have CHARGE Syndrome?

How do I know if I have CHARGE Syndrome?

CHARGE Syndrome is also known as...

CHARGE Syndrome synonyms

CHARGE Syndrome prognosis

CHARGE Syndrome prognosis

What is CHARGE Syndrome

What is CHARGE Syndrome

CHARGE Syndrome diet

CHARGE Syndrome diet. Is there a diet which improves the quality of li...

ICD9 and ICD10 codes of CHARGE Syndrome

ICD10 code of CHARGE Syndrome and ICD9 code

Prevalence of CHARGE Syndrome

What is the prevalence of CHARGE Syndrome?