Story about Hereditary Angioedema .

HAE in me

Dec 2, 2


I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014.

My first attack was at 8, when I was mistakenly hospitalized with appendicitis.  The surgery wasn't done, because I felt better in 3 days.  Next remembered attack was at 15, when my hands and feet got swollen.  It happened in US, still I was not diagnozed.

Throghout these years I have already had 3 unnecessary surgeries, diagnosed and treated against migrane, high blood pressure, dyscenesia, cholecistitus, appendicite, gynecological issues, allergy, trombophlebitis etc, all those diagnosis were taken off after diagnosed properly with HAE. 

I still do not have a local doctor, care center, hospital.  Do not have access to medicine.  I am not registred within the medical system here. I get consulted by a doctor from another country, who, God bless her kind heart, had been my number one supporter, just like my family.  

I have HAE type 1, no previous family history.

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