I was diagnosed accidentally, after seeing a TV show where the host talked about her HAE in 2014.
My first attack was at 8, when I was mistakenly hospitalized with appendicitis. The surgery wasn't done, because I felt better in 3 days. Next remembered attack was at 15, when my hands and feet got swollen. It happened in US, still I was not diagnozed.
Throghout these years I have already had 3 unnecessary surgeries, diagnosed and treated against migrane, high blood pressure, dyscenesia, cholecistitus, appendicite, gynecological issues, allergy, trombophlebitis etc, all those diagnosis were taken off after diagnosed properly with HAE.
I still do not have a local doctor, care center, hospital. Do not have access to medicine. I am not registred within the medical system here. I get consulted by a doctor from another country, who, God bless her kind heart, had been my number one supporter, just like my family.