Wartenbergs 5 years of experience

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5 years ago, 32 years old, I was walking up a hill an noticed that I had a stretching pain in my lower right ankle and the outside of my heel. As I was always active, I thought I strained something, but the area became more sensitive and then began going numb after the pain subsided. Then about 6 months later, I was removing a sock and had a similar occurrence on my right index finger knuckle. That area went numb, I went to the doctor who sent me to neurologist. The first neurologist did nerve studies and said they looked odd and said something was wrong but didn't know what. I went to Weill-Cornell in NYC for second opinion. They retook nerve studies and they came back normal. All blood work normal. They didn't know what I had.

I researched online and found the Wartenberg follow up study which matched my symptoms. The neurologist agreed that I had the condition. Up until this year, I had small flare ups every 6 months, but recently I have had multiple within a few months. Feeling has been returning to areas but the feeling is hypersensitive (almost like someone is tickling me). But I would rather be hypersensitive than numb.

I just started the Wahls protocol and I am hoping that addresses the situation, I have been desperately seeking a cause and cure, but not much out there. The anxiety its caused has been worse than the condition itself.

I am wondering if anyone would be willing to start a forum to share medical history to help try to find a trend. I certainly wood. I can be emailed at [email protected]

Best of luck. I suppose as things go, could be much worse, but what the f$K!