Stories of Sturge Weber Syndrome

Sturge Weber Syndrome stories
I am the parent of a young man who was born in 1987. I have met many families of children with Sturge Weber syndrome as I helped form a support group.
Sturge Weber Syndrome stories
amelia was born Sept 2,2014. She has Sturge Weber. She had a hemi in Sept of 2015 due to seizures. She has been seizure free so far. She a port wine stain over most of her face and has had three lazier treatments so far. She had Glaucoma surgery at 4...
Sturge Weber Syndrome stories
je suis malade depuis mes 9 mois, mais la maladie est née avec moi. Je ne peux rien faire seule, j'ai un important retard mental. Plus de crises depuis mes 12 ans l'épilepsie est stabilisée. Je vis dans un foyer médicalis&...
Sturge Weber Syndrome stories
Hello! I'll try to write, but my english needs improviment, ok? Paulo was born on December 14, 2007. He was born with a port wine stain on the right side of the face. A port wine stain also appears in his leg and right foot. When Paulo was six months...
Sturge Weber Syndrome stories
I'm 5 years younger than my brother with Sturge Weber Syndrome and we grow up together with our parents in Sweden. We both now have our own apartments in different towns, I have a cat and my brother has a dog. Our parents work in the theatre bus...

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Statistics of Sturge Weber Syndrome

3 people with Sturge Weber Syndrome have taken the SF36 survey. Mean of Sturge Weber Syndrome is 1595 points (44 %). Total score ranges from 0 to 3,600 being 0 the worst and 3,600 the best. Take the SF36 Survey

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Sturge Weber Syndrome

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