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How do I know if I have Sturge Weber Syndrome?

What signs or symptoms may make you suspect you may have Sturge Weber Syndrome. People who have experience in Sturge Weber Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Sturge Weber Syndrome?
1 answer
Do you have port wine stain over your eye and forehead area? Do you have headaches, seizures or strokes? Do you have glaucoma in one or both eyes? If you have answered yes to most of these things then you most likely have Sturge-Weber Syndrome.

Posted Aug 17, 2017 by Paul 1726

Do I have Sturge Weber Syndrome?

Sturge Weber Syndrome life expectancy

What is the life expectancy of someone with Sturge Weber Syndrome?

3 answers
Is Sturge Weber Syndrome contagious?

Is Sturge Weber Syndrome contagious?

1 answer
ICD9 and ICD10 codes of Sturge Weber Syndrome

ICD10 code of Sturge Weber Syndrome and ICD9 code

Is Sturge Weber Syndrome hereditary?

Is Sturge Weber Syndrome hereditary?

1 answer
Natural treatment of Sturge Weber Syndrome

Is there any natural treatment for Sturge Weber Syndrome?

1 answer
Living with Sturge Weber Syndrome

Living with Sturge Weber Syndrome. How to live with Sturge Weber Syndrome?

2 answers
Sturge Weber Syndrome symptoms

Which are the symptoms of Sturge Weber Syndrome?

2 answers
Sturge Weber Syndrome jobs

Can people with Sturge Weber Syndrome work? What kind of work can they perf...

2 answers

World map of Sturge Weber Syndrome

Find people with Sturge Weber Syndrome through the map. Connect with them and share experiences. Join the Sturge Weber Syndrome community.

Stories of Sturge Weber Syndrome

STURGE WEBER SYNDROME STORIES
Sturge Weber Syndrome stories
I am the parent of a young man who was born in 1987. I have met many families of children with Sturge Weber syndrome as I helped form a support group.
Sturge Weber Syndrome stories
amelia was born Sept 2,2014. She has Sturge Weber. She had a hemi in Sept of 2015 due to seizures. She has been seizure free so far. She a port wine stain over most of her face and has had three lazier treatments so far. She had Glaucoma surgery at 4...
Sturge Weber Syndrome stories
je suis malade depuis mes 9 mois, mais la maladie est née avec moi. Je ne peux rien faire seule, j'ai un important retard mental. Plus de crises depuis mes 12 ans l'épilepsie est stabilisée. Je vis dans un foyer médicalisé ou je me trouve très ...
Sturge Weber Syndrome stories
Hello! I'll try to write, but my english needs improviment, ok? Paulo was born on December 14, 2007. He was born with a port wine stain on the right side of the face. A port wine stain also appears in his leg and right foot. When Paulo was six months...
Sturge Weber Syndrome stories
I'm 5 years younger than my brother with Sturge Weber Syndrome and we grow up together with our parents in Sweden. We both now have our own apartments in different towns, I have a cat and my brother has a dog....

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Sturge Weber Syndrome forum

STURGE WEBER SYNDROME FORUM

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