I take deferiprone ferriprox to help with my condition
Ferriprox
Recently lost 70 lbs.
Balance therapy improved my walking tremendously.
Try and stay active as you can at all times
Hydrate --- via drinking or saline at hospital
Exercise riding bike along nature trails (Rails to Trails) It relaxing my mind and I can feel free of making mistakes that hinder me all day everyday basis (still working)/
Lots of stretching!
Be positive
Exercise
Someone to talk to on FB website helps a tremendously at times!
A muscle relaxant before bed helps with muscle tightening.