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Which advice would you give to someone who has just been diagnosed with Superior Mesenteric Artery Syndrome?

See some advice from people with experience in Superior Mesenteric Artery Syndrome to people who have just been diagnosed with Superior Mesenteric Artery Syndrome

Superior Mesenteric Artery Syndrome advice

Advice for Someone Diagnosed with Superior Mesenteric Artery Syndrome



Receiving a diagnosis of Superior Mesenteric Artery Syndrome (SMAS) can be overwhelming and may leave you with many questions and concerns. It is important to remember that you are not alone, and there are steps you can take to manage your condition and improve your quality of life. Here are some key pieces of advice to consider:



1. Educate Yourself:



Take the time to learn about SMAS, its causes, symptoms, and treatment options. Understanding your condition will empower you to make informed decisions about your health and actively participate in your treatment plan. Consult reliable sources such as medical websites, books, or reputable healthcare professionals to gather accurate information.



2. Build a Support Network:



Reach out to your family, friends, and loved ones for emotional support. Sharing your diagnosis with them can help alleviate some of the stress and anxiety associated with SMAS. Additionally, consider joining support groups or online communities where you can connect with others who have similar experiences. Sharing your journey with people who understand can provide valuable insights, advice, and encouragement.



3. Establish Open Communication with Your Healthcare Team:



Develop a strong relationship with your healthcare providers, including your primary care physician, gastroenterologist, and any other specialists involved in your care. Openly communicate your concerns, symptoms, and treatment preferences. Ask questions and seek clarification whenever necessary. Remember, you are an active participant in your healthcare, and your input is crucial for effective management of your condition.



4. Follow Your Treatment Plan:



Work closely with your healthcare team to develop a personalized treatment plan that suits your specific needs. Treatment options for SMAS may include dietary modifications, medication, or, in severe cases, surgical intervention. Adhere to the prescribed treatment regimen, attend follow-up appointments, and report any changes or concerns to your healthcare provider promptly.



5. Adopt a Healthy Lifestyle:



While there is no specific diet for SMAS, maintaining a healthy lifestyle can help manage symptoms and improve overall well-being. Focus on consuming a balanced diet rich in fruits, vegetables, whole grains, and lean proteins. Stay hydrated and limit the intake of processed foods, sugary drinks, and fatty foods. Regular exercise, as approved by your healthcare provider, can also contribute to your overall health and help manage symptoms.



6. Manage Stress:



Living with a chronic condition like SMAS can be stressful, and stress may exacerbate symptoms. Explore stress management techniques such as deep breathing exercises, meditation, yoga, or engaging in hobbies that bring you joy and relaxation. Prioritize self-care and make time for activities that help you unwind and reduce stress levels.



7. Seek Emotional Support:



Dealing with a chronic illness can take a toll on your emotional well-being. Consider seeking professional help from a therapist or counselor who specializes in chronic illness or medical conditions. They can provide you with coping strategies, emotional support, and help you navigate the challenges that come with living with SMAS.



8. Stay Positive and Seek Inspiration:



Maintaining a positive mindset can make a significant difference in managing SMAS. Surround yourself with positive influences, whether it's through uplifting books, inspiring stories, or engaging with supportive communities. Remember that you are more than your diagnosis, and with the right mindset, you can overcome challenges and lead a fulfilling life.



9. Stay Informed about Research and Treatment Advances:



Medical research is continually advancing, and new treatment options may become available. Stay informed about the latest developments in SMAS research and treatment by following reputable medical journals, attending conferences, or joining relevant online communities. Discuss any new findings or treatment options with your healthcare provider to determine if they are suitable for your situation.



10. Advocate for Yourself:



As a patient, it is essential to advocate for your needs and rights. Be proactive in your healthcare journey, ask questions, and express your concerns. If you feel that your current treatment plan is not effective or if you have any doubts, seek a second opinion from another healthcare professional. Remember, you have the right to be an active participant in your healthcare decisions.



Receiving a diagnosis of SMAS may feel overwhelming, but with the right support, knowledge, and proactive approach, you can effectively manage your condition and lead a fulfilling life. Remember to consult with your healthcare team for personalized advice and guidance tailored to your specific needs.


Diseasemaps
7 answers
Dont run to the internet and Google it straight away.everyones body is different what one person goes through with sm syndrome and the next person is different.

Posted Apr 18, 2017 by Venesia 1585
Find a doctor who is actually knowledgeable about the condition and do your research.

Posted Apr 19, 2017 by Nikki 2192
To not read about go to Dr.Nydan in Aurora,co knows the most About this disease in America.

Posted May 28, 2018 by Alexis 2500
The best advice to tell someone that just got diagnosed with Superior Mesenteric Artery Syndrome is "Your journey and your experience can be used to help others"

Posted Mar 14, 2020 by Macy Mae 2550
Dont stop fighting!!! The road for recovery will be rough but in the end worth it. Keep your head up and know you are not alone.

Posted Jan 28, 2021 by Babypay1 2650
Watch calorie use and calorie intake. Eat small amounts if you can through out the day and drink nutritional drinks, try to stay as hydrated as you can

Posted May 18, 2021 by Sarah Steffen 1100

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My name is Shawn and I live in Southern Oregon. I have the congenital form of SMAS. I didn't notice the changes going on back in 1991. It was my Wife that pointed out to me that I would often wake around 3-4am and vomit, very violently. Then I would ...
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My name is Michelle and Alecia is my daughter.  Alecia got sick in April of 2009 and was diagnosed with gastroparesis a few months later.  It wasn't until March 1, 2011that she was diagnosed with SMAS.  She had her Lap Duodenojejunostomy done on J...
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Growing up I was a happy healthy child until I hit my teens !! It started with ovarian cysts and endometriosis which we. Managed to get it under control once I was put on a birth control shot. Then in 2004 it wasn't feeling too good again to find out...

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