A Syringomyelia interview , Anxiety, Arachnoiditis, Bipolar Disorder, Depression.

Austyn's interview


How did all start?

I was 12 and I fell into the shower hitting my right shoulder causing constant pain since then

Do you already have a diagnosis? How long did it take you to get it?

I've been diagnosed with Syringomyelia for 9 years. It took two years to get diagnosed and 4 doctors.

For what medical specialties have you been treated? What has been the most useful specialty for your?

I have had two shunt surgeries, maintain headaches with specialists, and continue with physical therapy. My surgeries have saved my life and physical therapy let's me enjoy it.

What has been the most useful thing for you so far?

Community has been very useful. It let's you know you're not alone and learn helpful things through others trail and errors.

What have been your biggest difficulties?

Learning my new limits. I want to do things and go places but I get so tired too easily.

How has your social and family environment reacted? Have your social or family relationships changed?

Sadly I've lost my in person friendships because I don't get out much anymore. And because I need help more it difficult to ask family for help.

What things have you stopped doing?

I've had to stop driving and can't work because of the Syringomyelia.

What do you think about the future?

Through the difficulties and challenges I still see myself fighting for more good days and accepting the bad ones.

So far, which years have been the best years in your life? What have you done during them?

I like to say now I'm living the best years of my life. I just got married and enjoy it.

What would you like to do if you didn’t have your condition?

As crazy as it sounds I wish I could work.

If you had to describe your life in a sentence, what would it be?

As challenging as it is its worth it.

Finally, what advice would you give to a person in a similar situation?

Never give up. There's always more than one way to achieve things. It can be tricky but stay positive


Sep 20, 2018

By: Austyn

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