A Syringomyelia interview , Arnold Chiari.

Katherine's interview


How did all start?

Hands locking up and left side of body numb

Do you already have a diagnosis? How long did it take you to get it?

I had symptoms for year never really thought anything of it until I awoke numb. Went to the hospital and was admitted for 3 days running test. Found out I had both writhing those three days.

For what medical specialties have you been treated? What has been the most useful specialty for your?

None.

What has been the most useful thing for you so far?

Nothing.... Nothing at all.

What have been your biggest difficulties?

Coming up with money to find a specialist.

How has your social and family environment reacted? Have your social or family relationships changed?

Most of my family just ignores my issues. They don't talk about it and if I bring it up they change the subject.

What things have you stopped doing?

Trying to talk about it to certain people... no point.

What do you think about the future?

Meh... unsure.

So far, which years have been the best years in your life? What have you done during them?

These past few years even though my health is going. Nothing crazy just have a lot of support from my hubby. He's the best. Even when there is nothing he can do he tries.

What would you like to do if you didn’t have your condition?

Everything.

If you had to describe your life in a sentence, what would it be?

Lol

Finally, what advice would you give to a person in a similar situation?

Don't give up... it sucks but it's the life you were. Given so play your cards anyways.


Jun 20, 2018

By: Katherine

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