Story about Syringomyelia , Intracranial Hypertension.

My own hell

Jun 25, 2016

By: Rebecca


For around three years or more I have been looking for answers to why the pain is really bad, I was told DDD can or may make the pain bad, but it seemed too much for even that. I have listed DDD, syringomyelia which is a pisser of one too. It kinda is there and then there is a small place it is barely there, but i guess the neuro doc says it is there and right now I have been diagnosed IIH. I feel liek I have been given a lving death sentence. it is hard to deal with things i was told I was faking and to now deal with it as I tried to before I was believed is like thanks I could have had a better chance when I was talknig to you all before. Listen to me though It is not just about what I have...IT IS abot how we get treated for having something we surely did not ask for. I get quite a boost when I see how people other than me are able to get better. I am real, I cant get fixed unless it is threatening my life, and will then even then. I want a happy life not a life filled with what ifs. Stand your ground you know you best. I will say this I have and I hve found better doctors who may not know the spine but do know the parts it hurts and will do what they can for the synptoms. Fight to have a good life even with it.

Know someone who should read this story? Share it

0 comments

Login or register to leave a comment


Couple and Syringomyelia

Is it easy to find a partner and/or maintain relationship when you hav...

Syringomyelia is also known as...

Syringomyelia synonyms

ICD9 and ICD10 codes of Syringomyelia

ICD10 code of Syringomyelia and ICD9 code

What is Syringomyelia

What is Syringomyelia

Syringomyelia symptoms

Which are the symptoms of Syringomyelia?

Syringomyelia cure

Does Syringomyelia have a cure?

Syringomyelia advice

Which advice would you give to someone who has just been diagnosed wit...

Prevalence of Syringomyelia

What is the prevalence of Syringomyelia?