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How do I know if I have Syringomyelia?

What signs or symptoms may make you suspect you may have Syringomyelia. People who have experience in Syringomyelia offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Syringomyelia?
3 answers
Debilitating back pain, numbness of the upper extremities, headaches, brain fog, loss of sensation to extreme temperature changes. Thyroid disease. Connective tissue disease. Severe vitamin D deficiency. Endometriosis , Pots, intracranial hypertension, weakness in the extremities. Stiffness of the back and neck. Wasting and muscle atrophy, muscle spasms, loss of bladder control, intestinal problems. Loss of memory. Vision loss the comes and goes, difficulty breathing, neuropathic itching, degenerative disc disease, scoliosis, worst Cases possible cancer. And even paralysis and sleep apnea

Posted Mar 22, 2018 by Tammie 4000
It's hard to know if you have it. You need to have a MRI of the spine to know for sure

Posted Sep 20, 2018 by Austyn 3500
Translated from spanish Improve translation
It begins when you feel the q is not, and have neither standing nor sitting, and everything burns

Posted May 16, 2017 by María Angélica González gallon 1800

Do I have Syringomyelia?

Syringomyelia life expectancy

What is the life expectancy of someone with Syringomyelia?

6 answers
Is Syringomyelia contagious?

Is Syringomyelia contagious?

2 answers
Celebrities with Syringomyelia

Celebrities with Syringomyelia

2 answers
Is Syringomyelia hereditary?

Is Syringomyelia hereditary?

3 answers
ICD9 and ICD10 codes of Syringomyelia

ICD10 code of Syringomyelia and ICD9 code

2 answers
Natural treatment of Syringomyelia

Is there any natural treatment for Syringomyelia?

3 answers
Living with Syringomyelia

Living with Syringomyelia. How to live with Syringomyelia?

7 answers
Syringomyelia symptoms

Which are the symptoms of Syringomyelia?

11 answers

World map of Syringomyelia

Find people with Syringomyelia through the map. Connect with them and share experiences. Join the Syringomyelia community.

Stories of Syringomyelia

SYRINGOMYELIA STORIES
Syringomyelia stories
HELLO EVERYONE! MY NAME IS BETH NGUYEN RN, CEO OF WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE.  I AM 38 YEARS OLD WITH A DIAGNOSIS OF SYRINGOMYELIA, INTRACRANIAL HYPERTENSION, POTS DYSAUTONOMIA, HEART FAILURE, AND PULMONARY HYPERTENSION.  I HAVE A...
Syringomyelia stories
I developed a syrinx from t1 - t8. Loss of temperature feeling in left arm, shooting pains down left arm. Had a shunt placed, post surgery had sensory loss down left side and in my right leg. The shunt failed and the syrinx was growing fast again. We...
Syringomyelia stories
In 2007 I was diagnosed while pregnant with my son. I remember the dr calling and saying I had a rare condition called syringomyelia and I said syringo-what? I remember that phone call like it was yesterday. I was told I needed surgery ASAP but they ...
Syringomyelia stories
Syringomyelia stories
I was in a car accident on july 10th 1999 and was ejected through the windshield. It wasn't until 2006 that I became symptomatic and was disabled permanently in 2008. I have syrinx in thorasic and cervical and have had a drain placed in the cervical ...

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