2

What are the best treatments for Syringomyelia?

See the best treatments for Syringomyelia here

Syringomyelia treatments

Treatments for Syringomyelia


Syringomyelia is a rare neurological disorder characterized by the formation of fluid-filled cavities within the spinal cord. These cavities, known as syrinxes, can cause a range of symptoms including pain, weakness, sensory loss, and dysfunction of the bladder and bowel. While there is no cure for syringomyelia, several treatment options are available to manage the condition and alleviate symptoms.



1. Medications


Medications can be prescribed to manage the symptoms associated with syringomyelia. Nonsteroidal anti-inflammatory drugs (NSAIDs) such as ibuprofen or naproxen can help reduce pain and inflammation. Anticonvulsant drugs like gabapentin or pregabalin may be prescribed to control neuropathic pain. Muscle relaxants can help relieve muscle spasms and stiffness. Additionally, analgesics may be used to manage chronic pain.



2. Physical Therapy


Physical therapy plays a crucial role in managing syringomyelia. A physical therapist can design a personalized exercise program to improve strength, flexibility, and overall mobility. These exercises can help alleviate pain, improve posture, and enhance balance. Physical therapy may also include techniques such as massage, heat therapy, and hydrotherapy to provide relief and promote relaxation.



3. Surgical Interventions


In some cases, surgical intervention may be necessary to treat syringomyelia. The choice of surgery depends on the underlying cause and severity of the condition. The following surgical procedures are commonly performed:



a. Decompression Surgery


Decompression surgery aims to relieve pressure on the spinal cord and drain the syrinx. This procedure involves removing a portion of the bone at the back of the skull or upper spine to create more space for the spinal cord. It may also involve removing any obstructions or abnormalities that contribute to the formation of the syrinx.



b. Shunt Placement


In cases where the syrinx is large or causing significant symptoms, a shunt may be inserted. A shunt is a thin tube that is placed within the syrinx to divert the fluid into another body cavity, such as the abdomen, where it can be absorbed. This helps to reduce the size of the syrinx and alleviate symptoms.



c. Spinal Cord Untethering


If syringomyelia is caused by a tethered spinal cord, spinal cord untethering surgery may be performed. This procedure involves releasing any adhesions or attachments that are restricting the movement of the spinal cord. By freeing the spinal cord, the progression of syringomyelia can be halted or slowed down.



4. Pain Management Techniques


Chronic pain is a common symptom of syringomyelia, and various pain management techniques can be employed to provide relief. These may include:




  • Transcutaneous Electrical Nerve Stimulation (TENS): TENS uses low-voltage electrical currents to stimulate the nerves and reduce pain.

  • Acupuncture: This ancient Chinese practice involves inserting thin needles into specific points on the body to alleviate pain and promote healing.

  • Psychological Support: Counseling or therapy can help individuals cope with the emotional and psychological impact of living with chronic pain.



5. Ongoing Monitoring and Follow-up


Regular monitoring and follow-up with a healthcare professional are essential for individuals with syringomyelia. This allows for the evaluation of symptoms, tracking disease progression, and adjusting treatment plans accordingly. It is important to communicate any changes or new symptoms to the healthcare team to ensure appropriate management.



While there is no definitive cure for syringomyelia, a combination of medication, physical therapy, surgical interventions, pain management techniques, and ongoing monitoring can significantly improve the quality of life for individuals living with this condition.


Diseasemaps
11 answers
Ultimately, the best "treatment" is to fix the underlying problem. For me it was chiari surgery. However, unlike most, mine grew afterwards.

Posted May 22, 2017 by Christina Douthit 1001
Possibly a shunt. Best treatment though is finding the underlying cause and address that

Posted May 30, 2017 by Linda 900
The best treatment is decompression surgery if you have chiari malformation. If no chiari then a shunt if symptoms are effecting your life.

Posted Sep 8, 2017 by airsense00 200
For some people they are a surgical candidate to have the syrinx drained or have a shunt put in. But the more common treatment is pain management. Not enough research has been done on this condition for there to be other treatments that I am aware of

Posted Sep 9, 2017 by K smith 500
Not all Syringomyelia cases are operable. My Syrinx is in the anterior part of the spinal cord and It would paralyze or kill me to treat it. Other syrinxes are treatable by surgically decompression of the cord. Shunting is also an option, but often fail unfortunately.

Posted Oct 21, 2017 by Lisa Charkatz 500
Pain management, surgery, symptom treatment,

Posted Mar 22, 2018 by Tammie 4000
For me, the best treatment has been working with a top neurologist in my area to manage my pain so I can function. I am taking gabapentin and cyclobenzaprine daily. The neurologist also orders MRIs to keep an eye on the syrinx as to whether or not it i increasing in size.

Posted May 21, 2018 by Sue 1400
Every Syringomyelia warrior treatment plan is different what I've gone through isn't the same as someone else. What works for me might not work for others, but for me medication, surgeries, cranial manipulation and physical therapy. I will swear by physical therapy and cranial manipulation; I've learned has helped a lot but it's hard to find someone who does it.

Posted Jun 19, 2018 by Austyn 3500
This would depend on the type or severity of the conditions. There are very rare instances when a shunt operation cannot be performed as in my condition. I would need a new spine installed before they could do a shunt operation

Posted Jun 24, 2019 by Jack 2200
Everyone’s symptoms are different so they have to find the right “recipe” for them. These may include pain meds, muscle relaxants, modified work or rest.

Posted Jan 17, 2020 by Shona 500

Syringomyelia treatments

Syringomyelia life expectancy

What is the life expectancy of someone with Syringomyelia?

10 answers
Celebrities with Syringomyelia

Celebrities with Syringomyelia

3 answers
Is Syringomyelia hereditary?

Is Syringomyelia hereditary?

5 answers
Is Syringomyelia contagious?

Is Syringomyelia contagious?

5 answers
Natural treatment of Syringomyelia

Is there any natural treatment for Syringomyelia?

5 answers
ICD9 and ICD10 codes of Syringomyelia

ICD10 code of Syringomyelia and ICD9 code

4 answers
Living with Syringomyelia

Living with Syringomyelia. How to live with Syringomyelia?

9 answers
Syringomyelia diet

Syringomyelia diet. Is there a diet which improves the quality of life of p...

9 answers

World map of Syringomyelia

Find people with Syringomyelia through the map. Connect with them and share experiences. Join the Syringomyelia community.

Stories of Syringomyelia

SYRINGOMYELIA STORIES
Syringomyelia stories
HELLO EVERYONE! MY NAME IS BETH NGUYEN RN, CEO OF WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE.  I AM 38 YEARS OLD WITH A DIAGNOSIS OF SYRINGOMYELIA, INTRACRANIAL HYPERTENSION, POTS DYSAUTONOMIA, HEART FAILURE, AND PULMONARY HYPERTENSION.  I HAVE A...
Syringomyelia stories
In 2007 I was diagnosed while pregnant with my son. I remember the dr calling and saying I had a rare condition called syringomyelia and I said syringo-what? I remember that phone call like it was yesterday. I was told I needed surgery ASAP but they ...
Syringomyelia stories
I developed a syrinx from t1 - t8. Loss of temperature feeling in left arm, shooting pains down left arm. Had a shunt placed, post surgery had sensory loss down left side and in my right leg. The shunt failed and the syrinx was growing fast again. We...
Syringomyelia stories
Syringomyelia stories
I was in a car accident on july 10th 1999 and was ejected through the windshield. It wasn't until 2006 that I became symptomatic and was disabled permanently in 2008. I have syrinx in thorasic and cervical and have had a drain placed in the cervical ...

Tell your story and help others

Tell my story

Syringomyelia forum

SYRINGOMYELIA FORUM

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map